Long term fumaderm...??

[Caroline]

Hi
I've been on fumaderm for a year now and have reduced my dose from 2 tablets OD to 1 tablet once a day. We are trying every other day at the moment but it's starting to come back quite quickly.
Fumaderm has transformed me and my skin. It has had it's side effects but a very small price to pay and all manageable. I'm concerned what the long term implications will be, my dermatologist has said I can only be on it for 2 years and due to a lack of evidence for long term care I'm starting to feel a little anxious at it all returning again.
Has anyone been on it long term? Advise appreciated please
Charlotte x

Hi Charlotte,
Just read through your posts.
You started really slowly, normal built up with Psorinovo (another medication with DMF over here in the Netherlands) is 30 mg a week, until it starts working.
Your dose is quite low.
I know people that are on more than 8x 120mg Psorinovo, which can be dosed higher and are already on that dose for many years without problems.
The only things that counts are:
- does your lymphocyte and other measurements stay on the safe side
- can you deal with the side effects, and with me that is mainly a bit unstable intestines. No stomach cramps as Psorinovo is enteric coated slow release.
- the flushes don't count, they are not severe, a bit funny and have positive side effects.
In the about 30 years that it is now used there are hardly any problems. Sometimes someone stops when it apparently does not work anymore, but that is occasional.

Cheers,
Caroline