Tue-02-09-2014, 21:02 PM
(Tue-02-09-2014, 20:37 PM)jiml Wrote:(Tue-02-09-2014, 20:32 PM)Fred Wrote:(Tue-02-09-2014, 16:17 PM)Caroline Wrote: Sandra,
I agree with the guys and good that you went to the GP.
My order of working would be to go for fumaderm, DMF, with some painkillers the first weeks before it starts working.
DMF is quite harmless and you have a 70% chance of working.
If it does not work try to go for Stelara.
Why this way, well it seems that if you start with Stelara and for some reason stop with it, that than the psa comes back quite heavily. It then seems quite difficult to restart or change to another therapy.
In my proposed way there will always be Stelara on the backup side, if DMF would not work for you.
Indeed as Jim says, just throw everything off you that you need to in the forum. We will always be here to listen to you and react to you.
Most of us have been in alike positions. Me too have been not able to lift a coca cola bottle, because of the pain in my fingers.
I would just add Caroline, Fumaderm may not be available to Sandra as it's still early days with the UK as is Stelara and they probably won't offer it yet. And as far as I know your form of DMF (Psorinovo) is not available in the Uk, I only mentioned this as I didn't want to build up her or anyone's hopes of getting said treatments offered after light therapy.
You are right in some respects Fred in that it is not widely available but there have been one or two Scottish members that have been prescribed I noticed when they have joined although I don't think they have posted, it's certainly getting prescribed more as the cost is not great
That's interesting Jim and no I hadn't noticed, I do wish a few more would update as it helps others. I wonder if it's something to do with Scotland? the reason I say is because I was watching one of those debate things the other day and they mentioned that Scotland runs part of it's own NHS.
*Sorry to our Scottish friends if I've got it wrong, but it would be interesting to know if they do have more control than England on what gets prescribed.