Thu-04-11-2021, 12:32 PM
The care varies from great to awful, all within the same department at the hospital.
When psoriasis is really bad, it really is a crisis for the sufferer and it can be hard to take when no one seems to realise just how bad it is and how you’ve had no sleep, you are not just itching but in pain, you feel dreadful etc.
I think a punch biopsy sounds a bit of overkill, I know they do it if checking for cancer but I though psoriasis was diagnosable by looking and asking questions. Though perhaps they weren’t sure with your symptoms?
I often try to go to the derm knowing what I want, ie to stay on treatment, or to change it to something similar, or try and ask for something new like maybe a treatment I heard about on here.
Of course it’s then dependant on whether they agree or can even prescribe it, but I think it’s good to have some thoughts to give them.
So asking for something that might help both the crohns and the skin might be a good place to start?
Yes I have met terrible doctors who are quite happy for patients to languish and suffer on many different drugs with many different side effects, and get all huffy if you don’t get on with them like it’s you being the nuisance and not the drug.
I once read that if you say a drug isn’t working, they are taught that the most likely reason is you haven’t been taking it.
So we start off on the footing that doctors are told to assume most of us are liars.
That’s fab isn’t it?
I hope it’s not true..
When psoriasis is really bad, it really is a crisis for the sufferer and it can be hard to take when no one seems to realise just how bad it is and how you’ve had no sleep, you are not just itching but in pain, you feel dreadful etc.
I think a punch biopsy sounds a bit of overkill, I know they do it if checking for cancer but I though psoriasis was diagnosable by looking and asking questions. Though perhaps they weren’t sure with your symptoms?
I often try to go to the derm knowing what I want, ie to stay on treatment, or to change it to something similar, or try and ask for something new like maybe a treatment I heard about on here.
Of course it’s then dependant on whether they agree or can even prescribe it, but I think it’s good to have some thoughts to give them.
So asking for something that might help both the crohns and the skin might be a good place to start?
Yes I have met terrible doctors who are quite happy for patients to languish and suffer on many different drugs with many different side effects, and get all huffy if you don’t get on with them like it’s you being the nuisance and not the drug.
I once read that if you say a drug isn’t working, they are taught that the most likely reason is you haven’t been taking it.
So we start off on the footing that doctors are told to assume most of us are liars.
That’s fab isn’t it?
I hope it’s not true..