Tue-29-06-2021, 18:19 PM
(Tue-29-06-2021, 10:59 AM)YvonS Wrote: [
Thank you for your warm welcome!
I had read somewhere here on the Forum that you also had to give up sports because of the PsA? I can no longer ride a motorbike myself, I can't keep my neck up in the (riding)wind, I stiffen and can no longer squeeze the levers or my pedals. That became too dangerous, so unfortunately had to stop.
Another hobby, pinstriping, is very difficult because the inflammation in my neck presses on my nerves and then I start to shiver... not so handy when you have to draw a straight line
So next week I will have a face to face conversation with the rheumatologist, because of corona the results etc went by phone.
But when I speak to him, I want to indicate that I know that Mtx is not the most helpful medication for PsA.
And ask why did he decide to give it to me anyway? Why do I have to be on a drug for 3 months that you have no certainty about?
Now I also have Autism and I am very well aware of rules and substantiation of my stories. So I hope i can change his mind. We will see.
Yes, that is correct in my (Very) Young years I was a long distance runner. and I had to give that up, but I switched to spinning, and that works fine for me. And a lot of bicycling of course as genuine dutch
My Psoriatic Arthritis is way less than yours, is what I can read, so I still can ride my motorcycle (again). I really think that they have let you go on with your problems far too long.
Very sad for you that can’t do your pinstriping anymore, seems to me as a nice hobby,
I wonder what your rheum will say when you tell him that you are certainly not convinced on MTX. Anyway, keep a good eye on yourself.
Do you take the three questions with you? In order to help the conversation?
1 what are my possibilities ?
2 what are the pro’s and con’s of those possibilities?
3 what does that mean in my situation?
There is also a phenomenon called “consultkaart” which contains an overview of treatments, I assume that it is also available for psa, not sure though. You can find it on the “other” site where I know you from..
Inconvenient that you have autism.. but hey, very many special people also did have autism.