Tremfya for psoriatic arthritis Fred's journey

[jiml]

Not looking good. 

Had a very bad night and today it has not passed. Psoriatic arthritis in my shoulders, arms, wrists and fingers have been very painful. I'm at week 6 and two weeks to go before my next shot. I had thought it was the damp weather causing the problem this past few days, but it looks like now the weather is better that Tremfya isn't going to keep the psoriatic arthritis away.

I was going to wait till my appointment in August before I updated, but this has to be the worst I have had with my upper body for a few years. My right arm is usually rubbish with any treatment, but as I'm left handed having my left arm worse than the right is not nice.

Sooooooo pissed off as it was working. 

Psoriasis score the same at 4

Psoriatic arthritis score up from 5 to 21 ................................................... Damn that is bad.

Will continue with my next shot and wait till my appointment and discuss my options. Reduce the time between shots or move to something else, but what to move to as my options are limited.

Putting the positive mode on and drinking a few extra buckets of Merlot.

Not happy.

damn I replied to this last night but couldn't have posted it

Sorry to hear it seems to be failing you Fred I hope they can do the shots closer together to give you longer on the tremfya as it was going well for you .
There aren't that many options open to you as they don't like you going back to a treatment once it's failed ...I hope at your next appointment they will suggest a way forward although there aren't many you haven't tried
But good luck with the quest for a long term fix