Jims journey on Skilarence

[Caroline]

It's not used in France either.

It is available.

But some group of Management idiots who call themselves experts (PHMR) have advise to not reimburse it. Well then nobody is going to use it.

Again... Kat....   No Knowledge. 

Again, I disagree.  It could be a language thing.... I think at times that things are prescribed with FULL knowledge there are perhaps safer or more effective treatments.  I am not presuming that DMF falls into that category but I'm not saying it isn't as I also admit that MY knowledge is lacking.  I think pharma (at least in the US) controls a lot of what doctors prescribe.  A lot of research is done by them and since they are the ones that make the most money from what drugs are prescribed, I can't discount that it influences things (as in they push the money makers over effectiveness)  Do I think all doctors know about DMF?  No of course not.

And I am on your side, I think it is a great treatment that has helped quite a few people here.  However, since some have not had the same experiences not everyone is going to agree that it is the best thing since sliced bread (an American saying but means it isn't everyone's cup of tea)  So I think it's okay that not everyone uses the same thing, as long as it works for them and they are happy, it's all good. 

I do however think that although there may be a LACK of knowledge, I think saying they have NO knowledge is inaccurate.  And on that we will probably just have to agree to disagree. 

Okay.... I agree with a major lack of knowledge.

If I, just a patient without medical training, over here in Europe have to tell a specialist rheumatologist about DMF and that it works for Psoriatic Arthritis and he can only answer me that he has “heard” that it does not work (and he is not the first I have met on that) I can only agree with “major lack of”.
In the states knowledge is even less, you have a lot less history with DMF.

I have never said that it is kind of WD40, but I think that can be used much wider and thus cheaper, and more effective than it is used up to now. And of course it will not work with everyone. It certainly is not everyone’s cup of tea, I know several people who have tried, but did not succeed.
It is even more logical to use it, as DMF is able to turn down, reduce the activity, of a number of interleukins which the bio’s also do, only the bio’s completely disable specific il-‘s . DMF works wider and with a tunable strength/impact.

The side effects are known, can be measured, partly controlled are not toxic. But.. it will not work for everyone.