Health Boards
Wed-21-05-2014, 18:30 PM
(This post was last modified: Wed-21-05-2014, 18:31 PM by Paul9. Edited 1 time in total.)
Hi, I have come across this international survey which aims to increase understanding and knowledge of Autoimmune Arthritis, including Psoriatic Arthritis. I found the methodology and range of questioning very good, and raised some issues for me about why early sympyoms of my PsA were not picked up by professionals. I believe that contributing to this database of knowledge will only help to identify early symptoms for others in the future. The survey is very detailed, and takes about 30 minutes.
Early Symptoms of Autoimmune Arthritis: A Patient-Centered Research Study
LINK REMOVED
The Early Symptoms of Autoimmune Arthritis Study is organized and implemented by the International Foundation for Autoimmune Arthritis (IFAA) to address improper identification of early symptoms that may correlate with a delay in diagnosis. With a vast majority of patients affected, early symptoms that accompany a primary Autoimmune Arthritis diseasetic Arthritis. are often comprised of extensive joint involvement, systemic features and other complications. Primary Autoimmune Arthritis is an umbrella term which includes the following disorders*: Rheumatoid Arthritis, Psoriatic Arthritis, Ankylosing Spondylitis, Systemic Lupus Erythematosus, Sjögren’s Syndrome, and Adult Onset Still’s Disease. IFAA has identified that current published symptoms of the primary Autoimmune Arthritis diseases, which are used for detection, referral, and diagnosis, are inconsistent and fail to include some of the most common early symptoms identified in patient self-reports of their individual early disease experience.
The aim of this study is to develop a comprehensive and consistent Early Symptom Patient Model (ESPM) for the above mentioned Autoimmune Arthritis diseases and for the group as a whole, by cross-referencing existing symptom publications and detection/diagnostic criteria with the empirical research obtained from the Early Symptoms of Autoimmune Arthritis: Patient-Centered Research Study.
In addition to these core objectives, a secondary focus will be to evaluate the pervasiveness of “Undifferentiated Autoimmune Disease” diagnoses in patients which later progress to a confirmed diagnosis of Autoimmune Arthritis.
Early Symptoms of Autoimmune Arthritis: A Patient-Centered Research Study
LINK REMOVED
The Early Symptoms of Autoimmune Arthritis Study is organized and implemented by the International Foundation for Autoimmune Arthritis (IFAA) to address improper identification of early symptoms that may correlate with a delay in diagnosis. With a vast majority of patients affected, early symptoms that accompany a primary Autoimmune Arthritis diseasetic Arthritis. are often comprised of extensive joint involvement, systemic features and other complications. Primary Autoimmune Arthritis is an umbrella term which includes the following disorders*: Rheumatoid Arthritis, Psoriatic Arthritis, Ankylosing Spondylitis, Systemic Lupus Erythematosus, Sjögren’s Syndrome, and Adult Onset Still’s Disease. IFAA has identified that current published symptoms of the primary Autoimmune Arthritis diseases, which are used for detection, referral, and diagnosis, are inconsistent and fail to include some of the most common early symptoms identified in patient self-reports of their individual early disease experience.
The aim of this study is to develop a comprehensive and consistent Early Symptom Patient Model (ESPM) for the above mentioned Autoimmune Arthritis diseases and for the group as a whole, by cross-referencing existing symptom publications and detection/diagnostic criteria with the empirical research obtained from the Early Symptoms of Autoimmune Arthritis: Patient-Centered Research Study.
In addition to these core objectives, a secondary focus will be to evaluate the pervasiveness of “Undifferentiated Autoimmune Disease” diagnoses in patients which later progress to a confirmed diagnosis of Autoimmune Arthritis.