Sat-14-09-2019, 14:41 PM
(Fri-13-09-2019, 22:17 PM)Fred Wrote: Much the same as Caroline said apart from it also can make your toes go like radishes and it can also lock you up. When psoriatic arthritis gets going it can make you no longer able to move, yes I have been there and it is not nice.
Also what Caroline said about Tremfya Tremfya going after psoriatic arthritis Im keeping my eye on that one as I think it will be my next choice. I'm just not happy with what I am seeing our members saying about Taltz (no not just you Kat) and it's enough to make me want to skip it.
No offence but "rheumatologists" don't have a clue when it comes to psoriatic arthritis and again it is not just me saying this, I am also listening to our members. But yes do ask your questions it is how we get the treatment we deserve by asking.
My opinion is that there is no one treatment that can help with psoriasis and psoriatic arthritis, it's getting there but none of us are clear of both. We have to choose which one is the most important and for me it is psoriatic arthritis.
Don't take this the wrong way, but you don't need a diagnoses for psoriatic arthritis if you already have psoriasis (which is usually the case) you will know when you have it as it will start to give you pain, enlarged red joints, followed by everything just locking up and you can no longer move. Most luckily don't get to that stage, but I have been there and I will happily come around and shove your rheumatologists head down the toilet.
Sorry I am getting off my soap box. I am sorry to hear it has not worked for you Kat, it just goes to prove that we are still a very long way from ridding us all of psoriasis and psoriatic arthritis.
If I was you I would go for Tremfya, but it has to be your choice and you know we are here to back you up.
I don't have your same feeling towards rheumatologists as I quite like mine. I feel he explains things well and since a high percentage (about 30 per cent according to a reputable site I just looked at) of psoriasis sufferers become afflicted with psoriatic arthritis, I think it makes sense to be alert and cautious as I DON'T want joints that lock up (mine are bad enough as they are!) I'm saying this based on your statement of "if you have it you will know" which would mean I don't know so don't have psoriatic arthritis so shouldn't worry about it unless it happens. But I'd actually rather be overly cautious and catch it early and prevent as much damage as possible since I'm working hard right now to just be mobile. So if I'm showing early signs, I'm going to pay attention!
So I can't agree that "rheumatologists" don't have a clue when it comes to psoriatic arthritis as I am sure that some do not just as I am certain that some in fact do know quite a bit about it. I'm sure some can diagnose with certainty when a person is badly afflicted, just as I'm sure that early signs are not as easy to determine the exact cause and are often misdiagnosed. Doctors are not infallible but I feel I have received some excellent treatment so maybe that's why I feel a tad defensive here.
And I'm not trying to change your mind, you know I believe we are all entitled to our opinions, I am simply stating mine.