Health Boards
Sat-23-02-2019, 22:50 PM
#1 I would only consider a trial put to me by my dermatologist.
#2 I would not consider it unless it was from a drug maker.
#3 I would want to be given as much information as possible to do my own research.
#4 I am more than happy to give a biopsy or let trainees play with me, but a trial is not something I would be too keen on. I was offered one once but I needed more psoriasis and not to have been on a bio.
I am in favour of trials by drug companies as without them we may not have what we have today, and I am grateful to those that took part but they must be official and regulated.
I'm a bit concerned how your details were passed on but respect your view on not wanting to discuss it. Unfortunately today things have changed for the good and the bad.
The good is that treatments are getting better and psoriasis is becoming more acceptable.
The bad is that the scammers and money makers know that most people with psoriasis are an easy target. They know people will fall for their tricks of so called trails and endorsements.
In closing: Trials of any type should be discussed between dermatologist and patient, the patient has the final say and no way should a patients information be passed on to anyone without consent.
Edit: I forgot to add that Psoriasis Club will never accept recruitment of it's members.
#2 I would not consider it unless it was from a drug maker.
#3 I would want to be given as much information as possible to do my own research.
#4 I am more than happy to give a biopsy or let trainees play with me, but a trial is not something I would be too keen on. I was offered one once but I needed more psoriasis and not to have been on a bio.
I am in favour of trials by drug companies as without them we may not have what we have today, and I am grateful to those that took part but they must be official and regulated.
I'm a bit concerned how your details were passed on but respect your view on not wanting to discuss it. Unfortunately today things have changed for the good and the bad.
The good is that treatments are getting better and psoriasis is becoming more acceptable.
The bad is that the scammers and money makers know that most people with psoriasis are an easy target. They know people will fall for their tricks of so called trails and endorsements.
In closing: Trials of any type should be discussed between dermatologist and patient, the patient has the final say and no way should a patients information be passed on to anyone without consent.
Edit: I forgot to add that Psoriasis Club will never accept recruitment of it's members.