Psoriasis blisters
#10
(Thu-13-12-2018, 12:18 PM)Annettaj Wrote: Does anyone get blisters on there palms and feet.  Has anyone found something that can stop it.  I’m on enbrell and using fluocinonide cream but the blisters are so bad I can barely walk. I use baking soda to bathes to help with the pain and soreness.  Any input would be appreciated.

Hey Annettaj

Welcome to the group  Wave

I was diagnosed with Pustular Psoriasis in April 2017 - it was awful and I felt so embarrassed and self-conscious it was a rubbish time for me..... I went to my doctors who somehow managed to diagnose it as Pustular Psoriasis....  Sad  I then saw a Consultant who specialised in this particular disease and i was fast tracked into having PUVA treatment (psoralen and ultra violet light).  Subsequently I have been on 10mg of Acitretin since then and it has seemed to keep it at bay, thankfully!

I will say though my feet, like yours, were just unbearable and I was in total agony walking around, which was unfortunate as my job involves a lot of walking!!!! 

I have to say (and i know i am lucky to be able to say this at the moment) but I have lucky enough to be pretty much clear for over a year..... Consultant says it won't last for ever, but so far so good.....so I won't lie, I do feel very lucky!

Treatment wise (apart from drugs and PUVA), I tried to moisturise every night and morning, with Epaderm, to try and stop my feet from drying out but if i had to pick something that I thought worked for me it would be a combination of starting PUVA and mid way through starting Acitretin.....

I definitely know that this disease is made worse with stress.....so I tried to be as stress free as possible - virtually impossible in the world we live, i know!!

I am not sure how it works in the states but I actually chose which doctor i wanted to see, who specialised in this particular element of psoriasis so think that helped too...

I really really hope that you can find some respite from this disease and if you think i can help any further give me a shout....

Fingers crossed you find a solution soon........
Reply


Messages In This Thread
Psoriasis blisters - by Annettaj - Thu-13-12-2018, 12:18 PM
RE: Psoriasis blisters - by Fred - Thu-13-12-2018, 12:29 PM
RE: Psoriasis blisters - by Annettaj - Thu-13-12-2018, 13:12 PM
RE: Psoriasis blisters - by Fred - Thu-13-12-2018, 13:26 PM
RE: Psoriasis blisters - by Annettaj - Thu-13-12-2018, 13:44 PM
RE: Psoriasis blisters - by Fred - Thu-13-12-2018, 13:49 PM
RE: Psoriasis blisters - by Annettaj - Thu-13-12-2018, 13:58 PM
RE: Psoriasis blisters - by Fred - Thu-13-12-2018, 14:05 PM
RE: Psoriasis blisters - by jiml - Thu-13-12-2018, 19:05 PM
RE: Psoriasis blisters - by Wooley - Thu-13-12-2018, 22:07 PM
RE: Psoriasis blisters - by Moonscribe - Thu-13-12-2018, 23:41 PM
RE: Psoriasis blisters - by Annettaj - Tue-01-01-2019, 08:53 AM
RE: Psoriasis blisters - by Raxyl - Tue-01-01-2019, 09:41 AM
RE: Psoriasis blisters - by Fred - Tue-01-01-2019, 12:53 PM



Users browsing this thread: 1 Guest(s)