Newbie Haleyalexxis

[Caroline]

Hi! My name is Haley, I’m 20 years old. I’ve suffered from “dry skin” all my life. When I was younger they said it was eczema. Doctors always said I would grow out of it. I think I was about 13 when they started calling it psoriasis. My psoriasis covers more than 90% of my body. Its definitely gotten worse with age. Ive used topical steroids religiously for most of my life.  I have a bunch of other medical stuff going on as well. I have seen a million and one specialists, no one could ever really help me. A few of my specialists tried getting me in to National Institute of Heath and after 3 long years I was finally accepted and had my first visit in February of 2017. I thought that was going to by big break. Finally get a cure and be able to live a normal life. Well, turns out the NIH is stumped too. Patiently waiting, still. 

As far as my psoriasis goes we tried Stelara first. I stayed on that a few months, showed no signs of improvement. Then, they put me on Humaira. I’m currently still on the Humaira (40/0.8 ml biweekly). No improvement as far as skin goes but hair (alopecia) and nails have somewhat gotten better. Now I just started Acitreten (7-30-18). I hear a lot of negative things about the drug, but hopefully it will help. 

Hello Haley,

Welcome to psoriasisclub..
I see you have been copying and pasting. It is easier to type in directly on the forum.

You have a strange order of treatments, from Stelara to Humira and now Acetretin. For most it is the other way around.
Anyway, it may very well be that you react better to the Acetretin. Who knows. Good luck anyway.

There are several here on the forum that have used it, they may have some comments.

Have fun over here with us, we are a nice bunch of sufferers.

Cheers,
Caroline