Sat-03-02-2018, 12:13 PM
(This post was last modified: Sat-03-02-2018, 12:13 PM by jiml. Edited 1 time in total.)
(Sat-03-02-2018, 11:40 AM)usedtobecool Wrote: The reason I decided to post is that Ive been battling with this soul swallowing , life ruining monster since I was about 48 (and now Im 55) on my own as far as financially. I would pay cash to see a derma and he would give me samples since I was on a budget and I only had it on my knees and elbows a little bit but it never for 1 minute stopped its slow but sure progression...once it takes an area it keeps it. So Ive tried every topical known to man the last one bieng enstilar which works for a minute by the time I got through the can it wasnt working any more and the monster came back with a vengeance. Well now a few years down the road its on pretty much 80 percent of my body including my face and hands which u cant cover with chlothes.I live in southern california with my beautiful and understanding for now girlfriend who offered insurance thru her work and im signed up and went in last week to see if I could get hooked up with a derma and get some of the"good stuff" like stelara it may kill me which is what my old derma used to say but I am dying anyways inside and out so I gotta try it cause the road im on rite now is real dark and twisty . I basically go to work and thats it and I spend about 2 to 3 hours fixing my face every day and I always wear gloves and long pants and long sleeves which kills me....I used to be a surf rat shorts no shirt endless summer shit. I used to be cool now I have trouble even talking to people for fear of my makeup wiping off and my red face peeking out so Im hoping for the best and Ill keep posting when something good happens i got my TB test done so I can go into the new dermas with my results in hand so he knows im serious if he tries to give me some kind of cream youll probably hear about me in the newspapers...I dont want to kill again. Ha ha just kidding! ttys
Hi usedtobecool to the club ....I agree it's a nasty disease that we have to come to terms with and battle on trying to beat it or at least control it .....
Your old dermatologist was not very good if he told you Stelara would kill you .....but you know there are so many other things that can control the disease have a look at the oral treatments here Oral Treatments For Psoriasis he may well try you on one of these before Stelara
I hope you can get it ...but the point I'm making is that if you don't get it there are many alternatives including other Biological see Biological Treatments For Psoriasis
Good luck with whatever you get ...do let us know what you get and how it works for you
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Jim