Health Boards
Fri-05-01-2018, 18:50 PM
Hi ArteMie.... Please allow me to introduce myself as I don't think we have "spoken" to each other before. I've been away from this forum for a few months and have only just returned. I'm Kit and I've been living with P. for a few decades now. I see you have visited my Acitretin Journey - which I'm still on so you may already know more about me than I can remember!
Anyway over the years, like yourself I've been prescribed cream, lotions, steroids etc then more recently I graduated to Fumaderm (DMF) and Acitretin. I've had 5 light treatments in the past 6 years - the first 3 were UVA and the last 2 were UVB. I refused MTX recently and have now been offered (subject to me being healthy enough) either Humira or Stelara.
If I pass all my tests and am accepted into the world of Biologicals I won't be starting for about 8-12 weeks from now and apparently the decision as to which path I take will be mine. We'll see!
Fumaderm hit my white blood cell production and I was taken off it after a year (It was working)
Acitretin was blamed for sudden high PSA and imminent Kidney Failure, so dose was reduced - but in the end it turned out it was other medication that caused those issues. Right now I've been boosted from 20mg to 40mg daily. (Watch this space!)
My biologic choice at the moment is to ask for Stelara so I'm very keen to hear how you progress now that you have had your second jab. I too love Enstilar, I keep a little in an almost empty aerosol which I keep locked up for emergencies!
, As I'm in the middle of a flare up at the moment I may even be able to have more prescribed.
Sorry to read about the flu - hope you are fully recovered and managing to keep one step ahead of Mr ArteMie!
Kit
Anyway over the years, like yourself I've been prescribed cream, lotions, steroids etc then more recently I graduated to Fumaderm (DMF) and Acitretin. I've had 5 light treatments in the past 6 years - the first 3 were UVA and the last 2 were UVB. I refused MTX recently and have now been offered (subject to me being healthy enough) either Humira or Stelara.
If I pass all my tests and am accepted into the world of Biologicals I won't be starting for about 8-12 weeks from now and apparently the decision as to which path I take will be mine. We'll see!
Fumaderm hit my white blood cell production and I was taken off it after a year (It was working)
Acitretin was blamed for sudden high PSA and imminent Kidney Failure, so dose was reduced - but in the end it turned out it was other medication that caused those issues. Right now I've been boosted from 20mg to 40mg daily. (Watch this space!)
My biologic choice at the moment is to ask for Stelara so I'm very keen to hear how you progress now that you have had your second jab. I too love Enstilar, I keep a little in an almost empty aerosol which I keep locked up for emergencies!
, As I'm in the middle of a flare up at the moment I may even be able to have more prescribed.Sorry to read about the flu - hope you are fully recovered and managing to keep one step ahead of Mr ArteMie!
Kit