Pustular psoarisis what works

[Wooley]

Hello everyone
I have been reading many posts to help my try to understand this horrible disease better and get an idea as to what medications/diet or other treatments are working best for others. Have had pustular psoarisis since 2014.  Getting worse all the time. Have landed in the hospital with cellulitous. Hands and feet are terrible., I am typically a very active person but this is starting to really affect me emotionally and physically. Have tried creams, methotrexate, humira, now taltz. Any advice or what worked for others I woukd appreciate.  Thanks in advance

Hi Snitter

  to the Psoriasis Club!

I was diagnosed with pustular psoriasis in April this year - hit me like a tonne of bricks to be honest and I am still trying to come to terms with it and get my head around it.  I truly feel your pain, I too am was really active, went to the gym three times a week, played all sport especially football but I haven't played since around June as my feet are in so much discomfort and quite frankly agony sometimes!!  My job involves spending a lot of time on my feet too which has been impacted on......

I totally get where you are coming from in terms of it affecting you both emotionally and physically and quite frankly it is totally depressing......made worse when you can't see a light at the end of the tunnel....

So to date I was lucky in that I was fast-tracked into the system and pretty much started PUVA beginning of July and went to the hospital twice a week for about 3 months (which in turn takes it toll on you).  Half way through the treatment I started on Acitretin, 10mg a day, it is thought that starting this drug mid way through PUVA it has a better effect on your skin when PUVA finishes..... 

So since around the beginning of August, I have had no pustules either on my hands or feet, so currently really happy with this as you can imagine.  My feet are still very very sore though and various footwear is just a complete no no - including most trainers.  Not convinced that it will last though sadly, but I am trying to remain positive and just take each day as it comes really......

Sounds like you have been through the mill a bit to be honest so I hope you can find something that will work for you soon and you are able to get some kind of normality back in your life without it revolving around this crappy disease!!

You will enjoy your time in the club though, the members here have mainly absolutely to be fair, kept me sane to be honest, with their support and advice.  None of us are experts in this crappy disease but you will get a lot of support on here and a friendly shoulder should you need it......!

Welcome to the club   

Wooley

PS Epaderm is my saviour most of the time!!!