Health Boards
Sat-08-02-2014, 18:44 PM
Hi, thank you for your lovely message. I am based in the UK (West Midlands), and so far two of the doctors have suggested I might need 'light therapy', but that the dermatologist will decide on a course of action.
I'm glad you have found something that works ... if I come across anything positive or useful I will of course pass it on!
So far, I've found Grappa useful: tried it for the first time last night and had the best night's sleep in months! - not only did I manage an entire night of uninterrupted sleep, but when I woke up I wasn't in pain. This has changed as the day has gone on and I've had to get up and move about, but it was a marvellous feeling. Obviously (regrettably!) this cannot continue as main medication
Thanks again for your kind words. I can't imagine how you managed years with 60% coverage, when I've only had it for 2.5 months and am already finding it intolerable. At the moment I swing between trying to accept it, staying calm and being positive, then I go to feelings of frustration and futility. It doesn't help that I was in denial for so long; the first time I properly looked in the mirror and saw the extent of it, I got a massive shock. I jokingly refer to it as leprosy or elephant man-itis, on bad days I over-dramatise and call myself the Singing Detective
- it helps me cope, but deep down I really am feeling desperate. Thank you for the advice
I'm glad you have found something that works ... if I come across anything positive or useful I will of course pass it on!
So far, I've found Grappa useful: tried it for the first time last night and had the best night's sleep in months! - not only did I manage an entire night of uninterrupted sleep, but when I woke up I wasn't in pain. This has changed as the day has gone on and I've had to get up and move about, but it was a marvellous feeling. Obviously (regrettably!) this cannot continue as main medication
Thanks again for your kind words. I can't imagine how you managed years with 60% coverage, when I've only had it for 2.5 months and am already finding it intolerable. At the moment I swing between trying to accept it, staying calm and being positive, then I go to feelings of frustration and futility. It doesn't help that I was in denial for so long; the first time I properly looked in the mirror and saw the extent of it, I got a massive shock. I jokingly refer to it as leprosy or elephant man-itis, on bad days I over-dramatise and call myself the Singing Detective
- it helps me cope, but deep down I really am feeling desperate. Thank you for the advice