Checking in to say hello

[Caroline]

Hi all,

I've been lurking on this site for a while now, so I finally decided to de-lurk.  This is a fantastic forum, thank you all for making it such an interesting and informative site. I've followed Caroline's topics about psorinovo and auto-vaccination, and Bill's amazing thread of how DMF has helped him.

Hmm, not sure what else to say.  Maybe the cat will let go of my tongue at some point.

Cheers,
Kerry

Hi Kerry and a big   to the club, it's nice to welcome another Dutch member  I'm glad you have come in and stopped lurking ....although that is fine as well
I'm so glad you have found the site informative and interesting ..feel free to ask questions as you have probably noticed it is a very friendly site and we find it good to be able to share our experiences

Now if the cat lets go of your tongue    you could tell us about your psoriasis and how you treat it. And what effect it has had on your life ... but that is up to you what you want to share ...

Enjoy browsing the site ...you will find it free from spam or any bullying ( it's not tolerated ) you will never see advertising and won't be asked to donate ...unlike a lot of other sites ...

Nice to meet you hope to hear more from you soon......
Jim

Hi Jim,

Sorry it took me a while to respond, had to go to Eindhoven today. (Btw I live in NL but I'm actually an Aussie).  OK ,re treating my psoriasis:  I used to use creams when my plaque psoriasis started in my 20s because I was very self-conscious.  However, after a while I just felt like they were pretty pointless because (at least for me) my psoriasis is not extreme, although I do have it mainly on my face around my hairline.  And creams are not effective (as far as I am concerned) because they never stop my psoriasis.  After I gave up on dermatologist and their creams, I decided to just be vegan and for me this helps a lot.  There have been times when my psoriasis disappears for a time but then comes back.

The reason I'm really interested in this forum is that I am now at a point in my life where I know it's possible that I could get psoriatic arthritis, and if/when that happens I want to know what my choices are and not have a dermatologist tell me some horrible drug is my only choice.  As it is, I had an appointment with the dermo the other day and she says I definitely don't have psa yet, as she looked at my hand joints.  I just looked at her and thought..."Really? You just look at my finger joints?"  Surely there must be some scientific test like there is for RA? *sigh*  I also mentioned Psorinovo to her, but she just shut me down. I really don't understand why because people here have had success with it. Maybe someone can enlighten me?

Just go to another derm. If she shuts you down on the (second) best suggestion medication in the old and in the new guidelines, then you have the wrong dermatologist. There are thousands of patients treated very well by doctors with a broader mind. But it is that doctors group that is not acknowledged by the dermatologists, as they still claim that Psoriasis belongs to them as it is on the skin. But in fact it is an auto immune disease, so should belong to internal medicine.  
Still you are best off with a good dermatologist. Choose for a guy next time...  

But she is right on that there is no test....  
The best thing is to keep a good sense of the small joints in your fingers and in your feet.
When they start to hurt, that is a signal of PsA.
Also you might get an early warning if you have sore tendons, e.g. in your feet, think of an Achilles’ tendon injury or something that feels like that.
If your finger(s) start to swell because of an inflammation, then is becomes quite sure that you are getting PsA. Remember only a limited number of Psoriasis sufferers get PsA.

P.s. we will forgive you that you are not a Dutchie, because of Bill we have a very good feeling with Aussies.    

Caroline