Health Boards
Thu-26-01-2017, 23:18 PM
21 January 2017
Today I had a telephone call from my Dermatologist telling me that my blood count was still good with a lymphocyte count of 1.25 normal being between 1and 3
But because of a notification he has received of a risk of the rare brain disease PML being linked to DMF drugs he has asked all Fumaderm users to have an MRI scan to see if there is any sign of damage ...This doesn't overly concern me as I suppose it should show there isn't a problem
I am waiting for an appointment to have that test
I then went to see my Rheumatologist so she could look at my arthritis and see if there is any improvement since I increased the dose of my Fumaderm ...she looked at my joints and we agreed that there was no point in changing if I was coping...and it was not getting worse
She offered me Methotrexate again with a smile on her face knowing my reaction she then said if it does flare up I could go on to sulfasalazine, I asked about my psoriasis and she said the sulfasalazine would not work on that and I would have to stop the Fumaderm
She agreed it was a box ticking exercise to enable me to get onto a biological if the worst came to the worst
She said I need to fail on one other treatment before I can get onto a biological.
We both agreed that I would stay in touch via the dermatologist and only go back if the arthritis got bad and I needed to change...... On that positive note we parted company and will continue on Fumaderm unless the arthritis strikes me hard
Today I had a telephone call from my Dermatologist telling me that my blood count was still good with a lymphocyte count of 1.25 normal being between 1and 3
But because of a notification he has received of a risk of the rare brain disease PML being linked to DMF drugs he has asked all Fumaderm users to have an MRI scan to see if there is any sign of damage ...This doesn't overly concern me as I suppose it should show there isn't a problem
I am waiting for an appointment to have that test
I then went to see my Rheumatologist so she could look at my arthritis and see if there is any improvement since I increased the dose of my Fumaderm ...she looked at my joints and we agreed that there was no point in changing if I was coping...and it was not getting worse
She offered me Methotrexate again with a smile on her face knowing my reaction she then said if it does flare up I could go on to sulfasalazine, I asked about my psoriasis and she said the sulfasalazine would not work on that and I would have to stop the Fumaderm
She agreed it was a box ticking exercise to enable me to get onto a biological if the worst came to the worst
She said I need to fail on one other treatment before I can get onto a biological.
We both agreed that I would stay in touch via the dermatologist and only go back if the arthritis got bad and I needed to change...... On that positive note we parted company and will continue on Fumaderm unless the arthritis strikes me hard