Ixekizumab trial

[flagstare]

just getting organised now appt at 16.00 BST. Doc is a good guy and he is very aware of my history so I am hoping he keeps to his word and moves me to a simmilar med.

[Fred]

just getting organised now appt at 16.00 BST. Doc is a good guy and he is very aware of my history so I am hoping he keeps to his word and moves me to a simmilar med.

Are you pushing for Cosentyx ?

[MrsJEngle]

I too have been recently dropped from the ixekizumab trials. I was well into the trial, receiving one at home injection every 2 weeks. Unfortunately at this week's appointment my joint count was higher than what the trial allows (you must maintain a 20% improvement from your baseline joint count scores). Since I had more sore and swollen points than was allowed, I was kicked off of the trial. My rheumatologist even petitioned the trial board with the hope of me continuing, because the medicine has been very helpful, but his request was denied. My concern now is what will it be like coming off if this drug. How fast will my symptoms, both skin and joint issues, return. 

Have you had any issues coming off of the drug? Can you address my above concerns based on your experiences? What drug/treatment have you been placed on now?

Thanks for any insight!

[jiml]

I too have been recently dropped from the ixekizumab trials. I was well into the trial, receiving one at home injection every 2 weeks. Unfortunately at this week's appointment my joint count was higher than what the trial allows (you must maintain a 20% improvement from your baseline joint count scores). Since I had more sore and swollen points than was allowed, I was kicked off of the trial. My rheumatologist even petitioned the trial board with the hope of me continuing, because the medicine has been very helpful, but his request was denied. My concern now is what will it be like coming off if this drug. How fast will my symptoms, both skin and joint issues, return. 

Have you had any issues coming off of the drug? Can you address my above concerns based on your experiences? What drug/treatment have you been placed on now?

Thanks for any insight!

Hi Mrs J
Sorry I can't help with your query but hopefully Flagstare will reply to your post
I just wanted to welcome you to the club

Good luck from Jim and

[jiml]

It's the problem with trials they are just that " trials" you are a Guinea pig for them to test the drug on and whilst it is safe they can pull a trial at any time,

It seems unfair unless they have a plan for you at the end of the trial, but unfortunately it's not the way it works

I hope your rheumatologist gets you onto another biological drug before the disease gets too bad

[Briony1904]

Have now had my first instalment of IXEKIZUMAB two day's ago and the only thing  was yesterday my eye's were a wee bit nippy but no worse than they would be if I was very tired. it involved three injections to my stomach two by the nurse to show me how and then the third by myself "OUCH" Didnae like that at all. while I'm under this treatment I'm not allowed the use of ointments, tablets etc. to enable a clear study of the stuff at work, I am however allowed to use EPADERM Cream which I have been using for a while now and I find to be a very good moisturiser.

I have been reading these and wondered where I can get hold of this injection?

[Fred]

I have been reading these and wondered where I can get hold of this injection?

You need to have it prescribed by a dermatologist.

[jiml]

I have been reading these and wondered where I can get hold of this injection?

You need to have it prescribed by a dermatologist.

Fred is right you will have to get it from a dermatologist ...it's other name is Taltz ...why are you particularly after this particular drug?

Welcome to the forum by the way, feel free to ask as many questions as you may have
Jim