Posts: 28,480
Threads: 117
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
(Thu-11-02-2016, 09:17 AM)Bill Wrote: You might be able to take four in a single hit per day. If you can cope with this, try five in similar fashion, then six. I had greater efficacy from 600 mg taken as a single dose every other day than I did from 360 mg taken twice daily. By this method you may be able to control your P and keep at a safe lymphocyte count. I would caution you that the approach is experimental and untested, although it has worked a treat for me and has given excellent control of my psa as well. There are many other safe and proven therapies. We are spoiled for choice these days thankfully.
Good luck.
Additional to this experimental approach of Bill, also my doctor in the Netherlands has found in his research and through his knowledge of the human body that the intermittent use of medication is often better and that this certainly holds for DMF. This supports Bills experiments.
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
Hi moggy just wondering if your blood count has returned to normal and what dose of Fumaderm you settled on .....and is the skin clear
Posts: 5
Threads: 1
Joined: Feb 2016
Gender: Male
Location: Scotland
Treatment: fumaderm
Hi jim
they took me of fumaderm as tried lower dose but it didn't come work.
I'm now on otezla or apremilast which ain't the best if im honest
go back in 6 weeks see what they say. I've been getting tension headaches with this drug that's all and it's just two tabs a day.
So will give it a chance but not that good as yet been on them a 8 weeks maybe
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
(Sat-14-05-2016, 09:59 AM)moggy Wrote: Hi jim
they took me of fumaderm as tried lower dose but it didn't come work.
I'm now on otezla or apremilast which ain't the best if im honest
go back in 6 weeks see what they say. I've been getting tension headaches with this drug that's all and it's just two tabs a day.
So will give it a chance but not that good as yet been on them a 8 weeks maybe
That's a shame but probably a sensible move, otezla has had mixed reviews but the side effects will hopefully subside and the drug will go on to clear you....if that doesn't work you could ask to go on one of the injection bios like Humira or Stelara, there are many on here leading a good life on both of those drugs
I don't know much about otezla as its still relatively new
Thanks for your reply , hope to read more of how otezla is working or not for you
Jim
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