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UK could get Stelara discount for psoriatic arthritis.

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UK could get Stelara discount for psoriatic arthritis.
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
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#1
News  Tue-09-12-2014, 20:27 PM
Is this the start of the UK getting a better deal for psoriasis patients? We are often talking about the cost of treatments and saying how it's time the governments started taking control and dictating the price. Well it looks like it's time to pat the British government on the back for working a deal for the use of Stelara in psoriatic arhtritis.

I reported at the beginning of the year that the UK was the only country not to accept that Stelara can help psoriatic arthritis, you can read that here: England rejects Stelara for psoriatic arthritis But it's been reported that a deal has been done that could change that decision.

Quote:
The National Institute for Health and Care Excellence (NICE) is set to backtrack on negative guidance for a drug for psoriatic arthritis after agreeing a discount with its manufacturer.

NICE, which provides healthcare guidance for the NHS in England and Wales, issued a recommendation in May this year against extending the use of Janssen's Stelara (ustekinumab) to cover active psoriatic arthritis, a serious, progressive condition that can lead to progressive erosion of the joints.

However, the health watchdog has now issued new draft guidance that recommends the drug in this indication in “certain circumstances”, although only if Janssen provides the drug at a discount through a patient access scheme.

The circumstances required by NICE include if a person with psoriatic arthritis is unable to use one of several drugs already recommended for NHS reimbursement, or if a person has been treated with one or more of these drugs.

The medicines referenced by NICE are Janssen's own Simponi (golimumab) and Remicade (infliximab), AbbVie's Humira (adalimumab) and Pfizer's Enbrel (etanercept).

The draft guidance states that if a patient fits into the criteria outline by NICE, and Stelara is provided at the agreed discount through the patient access scheme, then the NHS should fund treatment with the drug.

Final guidance is still pending, however, and until then NHS bodies should make decisions locally on the funding of Stelara.

Peter Barnes, medical director at Janssen's UK subsidiary, said he was “pleased” with the new guidance.

“NICE's decision supports Janssen's view that ustekinumab offers value to the NHS as well as being clinically valuable. We are delighted that patients living with this condition may have access to another treatment option.”

Stelara is already recommended by NICE to treat the skin disease plaque psoriasis.

Source: pmlive.com

This is certainly good news should it work, and hats off to the UK government for giving it a try. 78
Quote
jiml Offline
100 + Member I Just Cant Stop !

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Treatment: Skilarence 5x120mg a day
#2
Tue-09-12-2014, 20:34 PM
(Tue-09-12-2014, 20:27 PM)Fred Wrote: Is this the start of the UK getting a better deal for psoriasis patients? We are often talking about the cost of treatments and saying how it's time the governments started taking control and dictating the price. Well it looks like it's time to pat the British government on the back for working a deal for the use of Stelara in psoriatic arhtritis.

I reported at the beginning of the year that the UK was the only country not to accept that Stelara can help psoriatic arthritis, you can read that here: England rejects Stelara for psoriatic arthritis But it's been reported that a deal has been done that could change that decision.

Quote:
The National Institute for Health and Care Excellence (NICE) is set to backtrack on negative guidance for a drug for psoriatic arthritis after agreeing a discount with its manufacturer.

NICE, which provides healthcare guidance for the NHS in England and Wales, issued a recommendation in May this year against extending the use of Janssen's Stelara (ustekinumab) to cover active psoriatic arthritis, a serious, progressive condition that can lead to progressive erosion of the joints.

However, the health watchdog has now issued new draft guidance that recommends the drug in this indication in “certain circumstances”, although only if Janssen provides the drug at a discount through a patient access scheme.

The circumstances required by NICE include if a person with psoriatic arthritis is unable to use one of several drugs already recommended for NHS reimbursement, or if a person has been treated with one or more of these drugs.

The medicines referenced by NICE are Janssen's own Simponi (golimumab) and Remicade (infliximab), AbbVie's Humira (adalimumab) and Pfizer's Enbrel (etanercept).

The draft guidance states that if a patient fits into the criteria outline by NICE, and Stelara is provided at the agreed discount through the patient access scheme, then the NHS should fund treatment with the drug.

Final guidance is still pending, however, and until then NHS bodies should make decisions locally on the funding of Stelara.

Peter Barnes, medical director at Janssen's UK subsidiary, said he was “pleased” with the new guidance.

“NICE's decision supports Janssen's view that ustekinumab offers value to the NHS as well as being clinically valuable. We are delighted that patients living with this condition may have access to another treatment option.”

Stelara is already recommended by NICE to treat the skin disease plaque psoriasis.

Source: pmlive.com

This is certainly good news should it work, and hats off to the UK government for giving it a try. 78

Yep I agree great news for PSA sufferers it's about time governments stood up and demanded sensible pricing.... Even at the discounted price I'm sure Janssen is still making a healthy profit and we the patients will get the chance of a proven drug
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
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#3
Tue-09-12-2014, 20:55 PM
(Tue-09-12-2014, 20:34 PM)jiml Wrote: Yep I agree great news for PSA sufferers it's about time governments stood up and demanded sensible pricing.... Even at the discounted price I'm sure Janssen is still making a healthy profit and we the patients will get the chance of a proven drug

I've been saying for a long time about the cost being dependent on the UK government and not the shareholders or manufacturer, I have also said you have the vote so use it.

When it comes to election time these are things people should think about. You may not like the bedroom tax, but you may like getting Stelara. Labour wouldn't have bedroom tax, but they probably wouldn't have worked a deal like this either.

If you decide to vote UKIP think, will they get in or will you be denying yourself Stelara because labour got in instead of conservative ?

*This has been a part political broadcast by Fred, if you vote for me at the next election I will abolish all political pasties and give you the people the right to choose the treatment you want.

[Image: 2_27_03_14_11_35_03.gif]
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
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#4
Tue-09-12-2014, 21:10 PM
(Tue-09-12-2014, 20:55 PM)Fred Wrote:
(Tue-09-12-2014, 20:34 PM)jiml Wrote: Yep I agree great news for PSA sufferers it's about time governments stood up and demanded sensible pricing.... Even at the discounted price I'm sure Janssen is still making a healthy profit and we the patients will get the chance of a proven drug

I've been saying for a long time about the cost being dependent on the UK government and not the shareholders or manufacturer, I have also said you have the vote so use it.

When it comes to election time these are things people should think about. You may not like the bedroom tax, but you may like getting Stelara. Labour wouldn't have bedroom tax, but they probably wouldn't have worked a deal like this either.

If you decide to vote UKIP think, will they get in or will you be denying yourself Stelara because labour got in instead of conservative ?

*This has been a part political broadcast by Fred, if you vote for me at the next election I will abolish all political pasties and give you the people the right to choose the treatment you want.

[Image: 2_27_03_14_11_35_03.gif]

Mmmm food for thought Fred the politician..... No there would be no revenue gained from wine as he would abolish any tax on alcohol .... UKIP ...... Sorry what are there policies....... Labour ooooh are they still there ..... Lib Dem .... Who...... Conservative .... No not much to choose between them really ok

Vote for Fred

[Image: 2_27_03_14_11_35_03.gif]
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,984
Threads: 3,889
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#5
Tue-09-12-2014, 21:13 PM
(Tue-09-12-2014, 21:10 PM)jiml Wrote:
(Tue-09-12-2014, 20:55 PM)Fred Wrote:
(Tue-09-12-2014, 20:34 PM)jiml Wrote: Yep I agree great news for PSA sufferers it's about time governments stood up and demanded sensible pricing.... Even at the discounted price I'm sure Janssen is still making a healthy profit and we the patients will get the chance of a proven drug

I've been saying for a long time about the cost being dependent on the UK government and not the shareholders or manufacturer, I have also said you have the vote so use it.

When it comes to election time these are things people should think about. You may not like the bedroom tax, but you may like getting Stelara. Labour wouldn't have bedroom tax, but they probably wouldn't have worked a deal like this either.

If you decide to vote UKIP think, will they get in or will you be denying yourself Stelara because labour got in instead of conservative ?

*This has been a part political broadcast by Fred, if you vote for me at the next election I will abolish all political pasties and give you the people the right to choose the treatment you want.

[Image: 2_27_03_14_11_35_03.gif]

Mmmm food for thought Fred the politician..... No there would be no revenue gained from wine as he would abolish any tax on alcohol .... UKIP ...... Sorry what are there policies....... Labour ooooh are they still there ..... Lib Dem .... Who...... Conservative .... No not much to choose between them really ok

Vote for Fred

[Image: 2_27_03_14_11_35_03.gif]

Just noticed I put "political pasties" Big Grin

Jim if I get in you can be Chancellor, and Caroline can be Chief Whip
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
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Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#6
Tue-09-12-2014, 21:20 PM
(Tue-09-12-2014, 21:13 PM)Fred Wrote:
(Tue-09-12-2014, 21:10 PM)jiml Wrote:
(Tue-09-12-2014, 20:55 PM)Fred Wrote:
(Tue-09-12-2014, 20:34 PM)jiml Wrote: Yep I agree great news for PSA sufferers it's about time governments stood up and demanded sensible pricing.... Even at the discounted price I'm sure Janssen is still making a healthy profit and we the patients will get the chance of a proven drug

I've been saying for a long time about the cost being dependent on the UK government and not the shareholders or manufacturer, I have also said you have the vote so use it.

When it comes to election time these are things people should think about. You may not like the bedroom tax, but you may like getting Stelara. Labour wouldn't have bedroom tax, but they probably wouldn't have worked a deal like this either.

If you decide to vote UKIP think, will they get in or will you be denying yourself Stelara because labour got in instead of conservative ?

*This has been a part political broadcast by Fred, if you vote for me at the next election I will abolish all political pasties and give you the people the right to choose the treatment you want.

[Image: 2_27_03_14_11_35_03.gif]

Mmmm food for thought Fred the politician..... No there would be no revenue gained from wine as he would abolish any tax on alcohol .... UKIP ...... Sorry what are there policies....... Labour ooooh are they still there ..... Lib Dem .... Who...... Conservative .... No not much to choose between them really ok

Vote for Fred

[Image: 2_27_03_14_11_35_03.gif]

Just noticed I put "political pasties" Big Grin

Jim if I get in you can be Chancellor, and Caroline can be Chief Whip

Mmmm pasties and Caroline as chef Whip
Quote
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,184
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Joined: Dec 2014
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Treatment: Stelara 90mg and G&T
#7
Wed-10-12-2014, 08:58 AM
I have P and PA but I find that Stelara is not as good for the PA, I don't like saying this but MTX was better for my PA but I would not go back to that if they paid me.
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
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#8
Wed-10-12-2014, 10:53 AM
(Tue-09-12-2014, 21:20 PM)jiml Wrote:
(Tue-09-12-2014, 21:13 PM)Fred Wrote: Just noticed I put "political pasties" Big Grin

Jim if I get in you can be Chancellor, and Caroline can be Chief Whip

Mmmm pasties and Caroline as chef Whip

I accept the Job... Big Grin Will fit good on my profile.
So:
[Image: 2_27_03_14_11_35_03.gif]
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,522
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Treatment: Got back to DMF slow release
#9
Wed-10-12-2014, 10:59 AM (This post was last modified: Wed-10-12-2014, 11:00 AM by Caroline.)
(Wed-10-12-2014, 08:58 AM)D Foster Wrote: I have P and PA but I find that Stelara is not as good for the PA, I don't like saying this but MTX was better for my PA but I would not go back to that if they paid me.

That is interesting Dave. Over here Methotrexate no better than Placebo for Psoriatic Arhtritis we have a research done on MTX and PsA, which says that it doesn't do a thing.
And that is also my personal feeling, I have used it, felt very sick and it didn't help for me.. (damned protocol). I will Whip the doctor that will try to put me back on it.
Quote
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,184
Threads: 17
Joined: Dec 2014
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Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#10
Wed-10-12-2014, 11:42 AM
I was on MTX at 25mg for six year orally and 20mg for a further three years by self injection and yes it made me quite ill over a period of time which is the reason I went on to injection but the side effects built up again .When I stopped the MTX for a six week break before I went on to Stelara I was 80% covered with P and fairly bad with PA. The Stelara cleared the P after the second injection at 4 weeks but I am still taking pain killers for the PA but it did start significantly to improve but not until I had been taking it for aprox 12 months.
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