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Psoriasis Club › HealthHealth Boards › Introductions v
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Joana new to forum

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Joana new to forum
LadyBug Offline
Member


Posts: 66
Threads: 1
Joined: Sep 2014
Gender: Female
Location: Poland
Treatment: started Psorinovo
#1
Thu-25-09-2014, 21:36 PM
Hello everyone! I am new. I have been reading your posts for some time. And I was also suggested to post some words here and I do...

I am 23 years old, female. I have experienced many different treatements during last 8 years, creams, ointments, lamps, MTX and so on... then youngest biological treatment in Poland. Nothing helped. (Well, Humira solved all problems after 1st injection, Psoriasis score went down from around 60 to 0... however now I can only pay it in full by myself, which is not an option nowadays). After doing routine research through the Internet I found Psorinovo info. Ordered.

Now it is the topic I would like to share my experiences, as well as reading yours. I am on "small" dosis now, 2nd week - 2 pills 30mg / day... No side effects, as well as no effects (I hope - YET!)

I am pretty surprised theres almost no info about Psorinovo, its almost suspicious, well...
I purchased Psorex before, but found out it was more a scam than any help.

Starting my new try!
best for all!
Joana
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#2
Thu-25-09-2014, 21:43 PM
(Thu-25-09-2014, 21:36 PM)LadyBug Wrote: Hello everyone! I am new. I have been reading your posts for some time. And I was also suggested to post some words here and I do...

I am 23 years old, female. I have experienced many different treatements during last 8 years, creams, ointments, lamps, MTX and so on... then youngest biological treatment in Poland. Nothing helped. (Well, Humira solved all problems after 1st injection, Psoriasis score went down from around 60 to 0... however now I can only pay it in full by myself, which is not an option nowadays). After doing routine research through the Internet I found Psorinovo info. Ordered.

Now it is the topic I would like to share my experiences, as well as reading yours. I am on "small" dosis now, 2nd week - 2 pills 30mg / day... No side effects, as well as no effects (I hope - YET!)

I am pretty surprised theres almost no info about Psorinovo, its almost suspicious, well...
I purchased Psorex before, but found out it was more a scam than any help.

Starting my new try!
best for all!
Joana

Nice to meet you again in the introduction threads I am pleased to read your updates on your treatments to date... Don't be downhearted I'm sure given time the psorinovo will work as I said before it is not a scam and Caroline is living proof it works, but you will have to be patient
Keep coming back there is loads of unbiased support here
Jim
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,958
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#3
Thu-25-09-2014, 21:51 PM
Welcome to Psoriasis Club Joana, I have been reading your posts talking with Caroline about Psorinovo and I can assure you it is not a scam. If it was it wouldn't be on Psoriasis Club, and Caroline is a long time trusted member with us and has given a lot of information about it. I know you have read her posts, but for those that haven't you can find them here: Dimethylfumarates and Psoriasis

I have spoken a lot with Caroline about it when she first joined Psoriasis Club as like you I couldn't find much information, and I protect members and readers of Psoriasis Club from any scams. After speaking with her, I decided it would be a good idea to have more information and asked Caroline to start the above thread. So now there is a little bit more information for others thanks to Caroline, and your input can add to that.

Please don't hesitate to start your own thread, about your experience with Psorinovo and update it as you go, I'm sure others would be interested.

And I will also say if you or anyone do ever find any type of scam on Psoriasis Club, let me know.

Regards.

Fred.
Kat Offline
Take my advice; I don't use it anyway.
*
Forum Helper
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#4
Fri-26-09-2014, 01:49 AM
Hi Joana! I've seen your posts in other threads but wanted to give you a Welcome here in the introductions section. Best of luck with your treatment and thanks for all the info you've shared.
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,518
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#5
Fri-26-09-2014, 05:34 AM
Hi Joana,

Good to see you introducing yourself over here ! Welcome to the forum.

Of course I am curious how the treatment will work with you. And I see forward to read from you. Don't hesitate to ask things.

Have fun also on this forum.

Caroline
LadyBug Offline Author
Member


Posts: 66
Threads: 1
Joined: Sep 2014
Gender: Female
Location: Poland
Treatment: started Psorinovo
#6
Fri-26-09-2014, 14:52 PM
Hello everyone,

thank you all for warm welcome, I will be updating at least weekly information about my treatment. Planning to take some pictures today, to have also visual confirmation Wink

Caroline has plenty of information and it is also in English (!) which is very valuable, believe me Dutch is hard! Translator helps but still - its not so fast as in English.

J.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#7
Fri-26-09-2014, 14:56 PM
Looking forward to your updates thanks thanks
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,958
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#8
Fri-26-09-2014, 15:10 PM
(Fri-26-09-2014, 14:52 PM)LadyBug Wrote: I will be updating at least weekly information about my treatment. Planning to take some pictures today, to have also visual confirmation Wink

Don't forget to start a new thread so you can keep it updated. Thumb

If you're not sure how to post images see here: [Group Specific]

And there is also [Group Specific] & [Group Specific] for members only if you wish.
LadyBug Offline Author
Member


Posts: 66
Threads: 1
Joined: Sep 2014
Gender: Female
Location: Poland
Treatment: started Psorinovo
#9
Fri-26-09-2014, 19:16 PM
Should I rather start new thread or continue in Psorinovo thread?

J.
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,958
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#10
Fri-26-09-2014, 19:48 PM
(Fri-26-09-2014, 19:16 PM)LadyBug Wrote: Should I rather start new thread or continue in Psorinovo thread?

J.


Well it's your choice, but it will get noticed better by others if it's titled say "Joana's Psorinovo thread" It's all about it getting noticed by readers and found on Google, etc. You're welcome to talk about it in this thread but not many read these threads or respond which is a shame.

There is no Psorinovo thread as such, the thread you are thinking of is [split] Dimethylfumarates and Psoriasis and yes you can continue there if you wish, but some members start their own thread to keep a track of things in one place, and our readers can also follow it too should they wish.

Having your own thread is your choice at the end of the day, but it does make it easier for others to follow.

Smile
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