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Psoriasis Club › HealthHealth Boards › Psoriasis And Psoriatic Arthritis Topics v
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Rate your psoriasis treatment

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Rate your psoriasis treatment
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,968
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#1
Sun-22-10-2023, 13:43 PM
Copy and paste the questions below and add your answers.

Quote:

What is your current treatment ?

How long have you been using it ?

Ease of use (1 low to 5 high) ?

Effectiveness (1 low to 5 high) ?

Do you pay for your treatment ?

Any side effects ?


Add more if you wish
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,968
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#2
Sun-22-10-2023, 14:12 PM
What is your current treatment ? Bimzelx

How long have you been using it ? 10 months.

Ease of use (1 low to 5 high) ? 5 Two simple injections every 8 weeks.

Effectiveness (1 low to 5 high) ? 4 So far I'm very pleased, it could be a little better but it's still early days.

Do you pay for your treatment ? No it's covered by the health system.

Any side effects ? When I first started I did get some folliculitis which is on the list, but I don't get it now.

I've been using bio treatments well over 10 years now and so far I would say this has been the fastest working, time will tell how long it lasts.
Quote
Raxyl Offline
100 + Member living the dream

100 + Member I Just Cant Stop !
Posts: 7,384
Threads: 35
Joined: Nov 2017
Gender: Male
Location: Launceston, Tasmania
Psoriasis Score: 2
Treatment: Cosentyx
#3
Sun-22-10-2023, 22:02 PM
What is your current treatment ? Cosentxy (Secukinumab) 

How long have you been using it ? for just over 5 years

Ease of use (1 low to 5 high) ? 5 two auto injectors monthly (300mg)

Effectiveness (1 low to 5 high) ? 5 the best I have ever been since the P developed over 20 years ago

Do you pay for your treatment ? mostly covered by government Pharmaceutical Benefits Scheme (PBS) costs me $41 per month.

Any side effects ? None that I have noticed.
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,968
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#4
Mon-23-10-2023, 11:15 AM
Yay that's two of using treatment Big Grin
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,518
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#5
Mon-23-10-2023, 17:58 PM
What is your current treatment ? DMF, Psorinovo

How long have you been using it ? Over 15 years.

Ease of use (1 low to 5 high) ? From 6 pills, to now 1 pill a day, or even less. It seems to get more effective.

Effectiveness (1 low to 5 high) ? Excellent in keeping the PsA and Ps under control.

Do you pay for your treatment ? No, it is payed by the insurance.

Any side effects ? Sometimes a flush, where I get a red and hot skin for about 20 minutes, but mostly in the night. About once a week. Sometimes a little unstable intestine, about once in 2 weeks. Keeping an eye on the lymphocytes once in the half year.
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,968
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#6
Tue-24-10-2023, 11:11 AM
That's three of us using treatment for psoriasis Big Grin
Quote
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,115
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#7
Tue-24-10-2023, 12:00 PM
What is your current treatment ?
Skyrizi one jab every 12 weeks

How long have you been using it ?
About 18 months I think..

Ease of use (1 low to 5 high) ?
Very easy I like the long interval.

Effectiveness (1 low to 5 high) ?
5 for skin, 2 for joints

Do you pay for your treatment ?
No

Any side effects ?
This is a hard question to answer as I don’t know how I’d be off the drug. It could be that all my aches and pains are actually being caused by it rather than by the psa.
But immediately after the jab, no side effects that I can detect.
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,968
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#8
Tue-24-10-2023, 12:04 PM
That's 4 Thumb

Anyone else ?
Quote
Kat Offline
Take my advice; I don't use it anyway.
*
Forum Helper
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#9
Thu-26-10-2023, 20:35 PM
What is your current treatment ? Over the counter ointment

How long have you been using it ? About... 3 years now

Ease of use (1 low to 5 high) ? 1

Effectiveness (1 low to 5 high) ? 1

Do you pay for your treatment ? yes

Any side effects ? no


Not very good information really, but it's where I am at the moment.
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,968
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#10
Thu-26-10-2023, 20:40 PM
You answered Kat that is five of us from 977, just think how impressive it looks to our guests. Big Grin
Quote
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