Posts: 28,484
Threads: 117
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
Thanks for your report Angie ! Good to hear that you are doing fine.
Also a positive report for Stelara, that it is doing so fine for you.
Annoying the Covid, but I think that even Stelara may have partly protected you. Hope you fully recovered and your smell is fine again.
Long may it continue for you !!
Caroline
Posts: 148
Threads: 4
Joined: Feb 2015
Gender: Female
Location: Scotland
Treatment: Pyzchiva
Thanks Caroline
Yes I had asked my Derm a while back about the Stelera maybe being a help , she had no idea. A bit early asking her that I think.
I did submit my psoprotect me survey a while back as I think it helps to know of others experience.
Thanks again.
Angie
Posts: 26,088
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
Hi Angie glad to see that you are still enjoying great results from the Stelara. I am still going strong with, like you, the odd bit of P mainly in and around the ears. The blood tests are a problem for me as well.
It's a fantastic treatment, interesting about the Covid but I have a stuffy nose most of the time so I wouldn't know mind you my air purifier helps at night. I was wondering if the Stelara will be a problem with the new vaccines.
Posts: 148
Threads: 4
Joined: Feb 2015
Gender: Female
Location: Scotland
Treatment: Pyzchiva
Thanks Dave
Yes if I hadn’t lost my sense of smell I would have taken no notice.
I have read somewhere that we would be unable to take the live vaccines like the Oxford one but there is plenty others in the pioeline.
Good to hear you are doing well.
Angie
Posts: 28,484
Threads: 117
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
(Tue-01-12-2020, 19:36 PM)Angie Wrote: Thanks Caroline
Yes I had asked my Derm a while back about the Stelera maybe being a help , she had no idea. A bit early asking her that I think.
I did submit my psoprotect me survey a while back as I think it helps to know of others experience.
Thanks again.
Angie
Great that you sent in your psoprotect me survey !!!
Posts: 26,088
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
I have sent an enquiry to NICE regarding the vaccines but even though they have acknowledged it I have not received any response.
Posts: 28,484
Threads: 117
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
(Tue-01-12-2020, 21:09 PM)D Foster Wrote: I have sent an enquiry to NICE regarding the vaccines but even though they have acknowledged it I have not received any response.
I will phone them and urge them to answer you. It is not decent to stay silent.
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
Glad that Stelara is still working for you and that you got over your bout with covid!
Posts: 26,088
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
Tue-01-12-2020, 21:38 PM
(This post was last modified: Tue-01-12-2020, 21:38 PM by D Foster.)
(Tue-01-12-2020, 21:14 PM)Caroline Wrote: (Tue-01-12-2020, 21:09 PM)D Foster Wrote: I have sent an enquiry to NICE regarding the vaccines but even though they have acknowledged it I have not received any response.
I will phone them and urge them to answer you. It is not decent to stay silent.
I have just registered with the psoprotectme .
The more information the better.
Posts: 71,229
Threads: 4,130
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
Hello Angie long time no see, thank you for coming back to give an update. We like to see updates as it helps others.
Good to hear Stelara is still working, it is a good treatment.
Sorry to hear you got Covid, but very pleased to hear you got through it. We do have some threads about the Bio's helping those that get Covid, but as it's all new to us we will have to wait and see.
Long may Stelara keep working and please do pop back occasionally to update.
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