Psoriasis Club
  • Forum
  • Home
  • Portal
  • Member List
  • Psoriasis Score
  • PQOLS
  • What is psoriasis
  • Search
  • Help
Hello Guest, Welcome To The Psoriasis Club Forum. We are a self funded friendly group of people who understand.
Never be alone with psoriasis, come and join us. (Members see a lot more than you)
wave
Login Register
Login
Username:
Password:
Lost Password?
 
Psoriasis Club › HealthHealth Boards › Psoriasis And Psoriatic Arthritis Topics v
« Previous 1 … 20 21 22 23 24 Next »

The Hidden Enemy

Pages (2): « Previous 1 2
Threaded Mode
The Hidden Enemy
Fred Online Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,956
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#11
Sun-18-09-2011, 19:37 PM
Christopher Wrote

I was 14 when i first got psoriasis and i thought i was the only person in the world to have it, i became highly skilled at hiding it, and absolutely dreaded the summer, i was a promising footballer at the time and used to rub mud on it before playing.by the time i reached 16 i was targetted by a number of pro teams and it was on the cards that i would be signing for queens park rangers as soon as i left school. i went along for my trial and discovered that one team would play in short sleeve shirts and the other team would play in long sleeves. my name was called and i was to play in short sleeves, i just could not do it so i faked an injury . I was clearly the best player there and loved football passionatley. i would have rather died than let someone see what i had. i think about that momemt quite alot, im sorry to say that i have let PSORIASIS define my life. twenty years later i began working as a stand-up comedian in london. I quickly became very comfortable and felt at ease on stage and was offered a 4year deal with a top agency, 2 weeks before making my debut at the world renowned [comedy store] in the west-end of london . my hands became covered in stinkin.stupid,dirty rotten, nasty filthy psoriasis, up until then i had never had it on my hands or face, how could i now go on stage and take the piss with what looked like leprosy all over me/ I have pretty much become a recluse- feeling sorry for myself and smoking weed- im ashamed to say it has beaten me, on the upside tho- i no longer have suicidle thoughts anymore thanks to the anti-depressent-citlopram. I apolgise for this sad and sorry tle but i do feel better right now putting this in print......all my love christopher x xxx
Quote
Fred Online Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,956
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#12
Sun-18-09-2011, 19:39 PM
Hi Christopher, thanks for sharing I'm glad it has helped you to talk about it and hopefully will help others. No need to apologise for your post this is what the forum is for.

I'm sure you have already helped others with the "Mud Tip" Wink

I know it's easy to say but the sooner you can learn to live with it the easier it gets. Maybe you should have a good toke on that joint and make up some Psoriasis Jokes (obviously in our favour of course).
Quote
Fred Online Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,956
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#13
Sun-18-09-2011, 19:43 PM
I hope this thread has helped someone and I would love to see some of those old members again. but some of the posts are new and that is why I have decided to keep Psoriasis Club going. I have always said if it's helping one person then I will continue.

Please feel free to continue this thread if you wish.

Fred.
Quote
leopardless Offline
leopardless


Posts: 77
Threads: 9
Joined: Oct 2011
Gender: Female
Location: Forest near mountains NY
Treatment: Variety of treatments
#14
Fri-28-10-2011, 14:43 PM
Thank You to all who shared their stories.
It helped me.

I am a coach,patient advocate, color therapist,entrepreneur, and I defy he odds after several accidents.
It was hard this last month, when I was trying to clear my flare up and work at the same time. I needed time alone. I care take my husband and his 4 children and our dog. so the day an fly by.....and I am lucky to have humble home and simple pleasures in life.

While sitting at beach I heard people whisper "those are sun spots". I got down not because of the intrusive comments but because I need new hip and an (si) joint fusion. I take fish oil and changed my diet. I am not giving up coffee....wine is okay...to give up.
My neurologist said I cannot gain weight as it will affect my spine.

I try to change the subject when family or friends ask me questions. Like I invite conditions or feel the weather changes. I would not call it grin and bear it. I don't want to be over identified by it or crippled. Listen to music or an opera like Carmen, or The Stones, Beatles,etc...

I find it rude when people stare --- drives me nuts some days....what the hell are you gawking at....( I say to myself) My husband reminds me that I am attractive. Big deal attractive to who? It does not get me out of a back brace, seen as incompetent or rid me of trauma from being rear ended by a large truck. I am sorry I should be on the rant page but I am not there yet.

I tackle hypothyroid issues a brain injury...so I lose items, misspell words, have dulled hearing blah blah... I get skin check for the c word.

The fish oil helped my depression and arthritis, I take it liquid form, lots of it. My hip(s) feels better. I have two misses on the c word.. I have an area of my body with irregular cells... for me it is why tempt my fate; so I love life too much to fall down again. I am too terrified to take meds.

I use sun lamps for the face and UVB light for my body. I try to get it done in the morning. I take miner salt- oil baths,use essential oils as well and incense. I wear up beat colors and i have moisturizers in every bathroom and the car. I am over talking about my aliments with insensitive people, who all they see is my face , and say well you look great. I did not ask for your opinion! I did not bring up the subject.

I love to listen - (part of my work).... to others and be creative whenever I can; read great books and spend time with like minded souls. I have an ever expanding rapport with colleagues in the UK. I have my work, and that helps and is a proper focus...Most valuable thing for my well being is sound sleep...

I am grateful even when I am having the winter blues, animals and loving people - at least, for me as well as photography, design, consigning and designing clothing and collecting vintage and learning.
You are not studied when you are the student. My brain is my favorite organ.
I just got my compass for feng shui and I need to learn the technical aspects for my home staging work.

Over and out...

LL

I have new meaning to crack on.

All the best
Quote
Fred Online Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,956
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#15
Fri-28-10-2011, 15:13 PM
(Fri-28-10-2011, 14:43 PM)leopardlawless Wrote: My husband reminds me that I am attractive. Big deal attractive to who?
Your Husband Five

Thanks for sharing, you say this thread has helped you. well now your helping others. well done. Thumb

Quote
leopardless Offline
leopardless


Posts: 77
Threads: 9
Joined: Oct 2011
Gender: Female
Location: Forest near mountains NY
Treatment: Variety of treatments
#16
Thu-17-11-2011, 19:45 PM

Thanks I had a weird experience with a rheumatologist yesterday.

He was talking to me about my fear of MTX.. and he was telling me all the positives. However, he made a derogatory remark about how others would view me as contagious...I know that is a reality. I said after thirty years I am kinda over that; indeed I am not! I was hurt a little and felt judged or that the doctor was repulsed by me. He also inferred that my PA would attack my ligament and tendons and that I would be crippled in time if I don't take MTX, and I better have insurance as it costs 25k annually to take PA drugs.
A bit devastating as my endocronoligist says don't take medications ,,,they kill you. so do I jump.. go out and drink and drug up...take a f-it- it all pill and have a full on blast... of self destruction...
Al t this point..I am not feeling sorry for myself.. I resent the amount of time I spend on doctor visits.. I could give sweet f- all right now about a blood test ,more pills and not I need pelvic MRI and possible new hip. will PA attack all my injured parts... if that is the case then I beet enjoy today...I dont want reanl failure..i just missed getting tumors in my kidneys.. from high levels of vitamin D. Drink or take meds ...you tell me.

Today?
I had a another appointment with a pain mgt doctor...and all of the patients ( as my dad said "the redneck rivera patients") stared at my spotted legs arms and my ghastly looking face.
I look like I have the measles. At one point I asked my dad why are people staring.. Okay I had a cane and back brace....I feel intruded when people stare...invasion of personal space...My family gave me a nick name as a teenager... f---alone.
Now I am adult wanting to be left the F---Alone.
Quote
« Next Oldest | Next Newest »
Pages (2): « Previous 1 2




Users browsing this thread: 1 Guest(s)
    About | Contact us | Login | Register | Home | Cookies/GDPR | RSS Syndication | Portal | Types Of Psoriasis | Psoriasis Score | Members Only Boards
    Copyright © 2010 - 2025 Psoriasis Club | All Rights Reserved | Founded May 2010 | Psoriasis Club Is Self Funded Without Sponsors Or Donations | Software by MyBB | Social
Linear Mode
Threaded Mode