Newbie with an oldie disease

[Cory]

Idk, I was on humira for a yr. or so and when it left my system my Ps came back along with aching hands. Its not a severe pain, just achy.  My joints don't seem swollen, but helI I don't know. I don't know much about P arthritis, only that people with Ps are prone to get it. I need to educate myself a little better that's for sure. Hell, it's been 17 yrs. Or so for me (around 21 or so) since I got it and I have never spoke to anybody else who has it.

[jiml]

Idk, I was on humira for a yr. or so and when it left my system my Ps came back along with aching hands. Its not a severe pain, just achy.  My joints don't seem swollen, but helI I don't know. I don't know much about P arthritis, only that people with Ps are prone to get it. I need to educate myself a little better that's for sure. Hell, it's been 17 yrs. Or so for me (around 21 or so) since I got it and I have never spoke to anybody else who has it.

That's a common theme Cory ....until I found this site I had never spoken to anyone about psoriasis and kept it hidden away the best I could ....it is so refreshing to come here and realise that there are so many people who have suffered in silence, that now have a platform to share experiences with fellow sufferers

There is a wealth of knowledge in the health boards here ...and ifyou can't find anything just shout out and someone will help youor point you in the right direction

[Spotless]

Idk, I was on humira for a yr. or so and when it left my system my Ps came back along with aching hands. Its not a severe pain, just achy.  My joints don't seem swollen, but helI I don't know. I don't know much about P arthritis, only that people with Ps are prone to get it. I need to educate myself a little better that's for sure. Hell, it's been 17 yrs. Or so for me (around 21 or so) since I got it and I have never spoke to anybody else who has it.

I think we are similar I was on humira for 3 years and only have just experienced joint pains. I don't know much about it either as it's new to me. I would speak to your dermo about it and perhaps they will refer you to a rheumatologist if needed. The only thing I can recommend is to frequently exercise the areas where there is pain and if it's too much you can go to the GP and they can prescribe something for the inflammation.

What are you now using to treat your psoriasis?

[Cory]

Coal tar.  My grandpa gave me a bar of it when I first got Ps and it's about the best stuff there is (i think)  Besides bio's.  Tried metotrexate for a year...a joke. Then a couple yrs ago recieved grant for humira for year...a life changer,almost completely cleared me . That ship sailed.  As miserable as ps is,  I kinda wish I'd never taken it. I spent years watching the commercials thinking. " there's still a chance".  So one day i had 8k burning  a hole n my pocket,  So I grabbed a phonebook and made appointment.(first derm visit ever). I'm tellin  ya I was pumped! (keep in mind this is all my fault for not educating myself first)  .....he laughed   and said "take this (methotrexate) it's as good as anything else". (liar!!)  I think he could see the fury in my face and wanted me out of there.  So for a year I went to my local health dept. and let them butcher me for bloodwork . My last visit there the nurse smelled like booze and bruised my arm from to wrist to shoulder (never hit a woman...but I coul have jacked her).
I was done!  So then the humira...party time!!  Like I said , It was gone and the shitstorm returned....party over: (  I pay cash for everything so HUMIRA might as well be UNICORN PISS CAUSE I ain't gettn it!  So ya...Coal tar, that's what I use.

[Spotless]

Hi Cory,
I'm sorry to hear about your experience with p. It isn't easy and I think we've all been there as well. I was also on methotrexate which didn't do anything for me as well. I was on it for along time with a crappy dermatologist who in the end told me there's nothing more he can do for me!
Since then I have found a very good dermatology team under the care of a Professor who has spent his life on p research. I'm referred to the country's leading dermatology facility there is. It counts having a good Medicial team. Since then I have been on many different drugs which has controlled my skin and cleared it but stopped working over time. You need to unfortunately go through the process of systemic drugs before you start biologicals. In the UK the system is different from the US I guess we are lucky to have the NHS who funds our treatments so moving to biologicals is a lot easier.
Biologicals gave me my life back even though some have failed over time I was was 100% clear on each of the ones I was on. I also tried cyclosporine which isn't a biological before I started biological treatment which worked really well for me I was 100% clear on it for a few years. Maybe this is something to consider and will be a cheaper drug to help the p along.
Unfortunately I think Coal Tar can only do so much depending on how serve your p is. Perhaps some of the Americans here can help out with how you could get funding to get on biologicals. I have read there are also charities where you can perhaps try to get treatment... 
Try to find a good dermatologist and I do hope you will find some funding to help your p along.

[Fred]

Perhaps some of the Americans here can help out with how you could get funding to get on biologicals.

Kat made a helpful thread about it: Insurance Info for the U.S.

[Caroline]

Yes, and read Bill's experiences, if you have little to spend.
If you have to pay for everything yourself, then Bio's are out of the question because of their price.

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