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Psoriasis Club › HealthHealth Boards › Psoriasis And Psoriatic Arthritis Topics v
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karaokeking Offline
Member


Posts: 13
Threads: 7
Joined: Feb 2015
Gender: Male
Location: spain
Treatment: dovobet
#1
Wed-17-06-2015, 09:46 AM
This Friday, the 18th, i am going to see the dermatologist for the first time in 42 years. I wonder if you could tell me what types , of creams or ointments most of the members, use . As i have said in previous posts, i only have it mildly, even though it's on different parts of my body.
I would prefer, i think to have a go taking tablets instead of everyday applying different creams. I have had the most success with Dovobet, but it's supposed not to use it for long periods, even though i have used it for years, without the doctor ever telling me to come of it.

The last time i saw the docs and asked to try a different ointment he put me on Dovonex, well first of all i didn't think it was doing any good, but secondly it says not to be in contact with the sun, when using it.Well with me spending six months of the year in Tenerife it was impossible not to be in the sun. So i am trying to ask for your advise as to when i see the Dermatologist what ointment you think that most of the members have the greatest success with, or the tablets. As i would like to tell him, what i would like to use with the suggestions of the Moderators. Thank you.
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#2
Wed-17-06-2015, 10:15 AM (This post was last modified: Wed-17-06-2015, 17:03 PM by jiml.)
(Wed-17-06-2015, 09:46 AM)karaokeking Wrote: This Friday, the 18th, i am going to see the dermatologist for the first time in 42 years. I wonder if you could tell me what types , of creams or ointments most of the members, use . As i have said in previous posts, i only have it mildly, even though it's on different parts of my body.
I would prefer, i think to have a go taking tablets instead of everyday applying different creams. I have had the most success with Dovobet, but it's supposed not to use it for long periods, even though i have used it for years, without the doctor ever telling me to come of it.

The last time i saw the docs and asked to try a different ointment he put me on Dovonex, well first of all i didn't think it was doing any good, but secondly it says not to be in contact with the sun, when using it.Well with me spending six months of the year in Tenerife it was impossible not to be in the sun. So i am trying to ask for your advise as to when i see the Dermatologist what ointment you think that most of the members have the greatest success with, or the tablets. As i would like to tell him, what i would like to use with the suggestions of the Moderators. Thank you.

Hi again nice to see you back, and the only thing I can tell you is , that you are right you should take care and cover up or use sun block when on Dovonex as it is a vitamin D derivative and you are possibly getting enough vitamin D from natural sunlight
Dovobet is really the only other one that has approval in the UK that I am aware of and that is a steroid ointment as you rightly say it's for short term use
As I have said earlier the reason they don't prescribe tablets or bio drugs for mild psoriasis is that the risk v benefit ratio is not considered good . So to you and me that means that the risk of taking the non topical treatments are higher than the benefits.
It's always worth an ask and if you arm yourself with information from the prescribed treatment boards
These threads will help you
Methotrexate is about methotrexate which is likely, if you get one to be that first

Then look at Acitretin  and Ciclosporine these are also things they may offer and are very effective

Look also at my treatment Fumaderm it's a good treatment and works well on me
Finally look at the biological treatments they are unlikely to go down this route as it is expensive and you must have relatively severe psoriasis before they go to this stepBiological Treatments For Psoriasis

Click on any of the above links to go direct to the thread
I can say that we are not medically trained and these are my personal ideas but may be of use in an argument with a dermatologist, it's always best to go to these meeting well armed with knowledge I have found
There are many other treatments in the pipeline but I think it will be a while before they are prescribed here for mild psoriasis

Edited by jiml
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#3
Wed-17-06-2015, 11:33 AM
There is hope for the future but when we don't know look at some news Fred posted recently Rogne Bioscience will present Topical Biologic for psoriasis at SID meeting
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,956
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#4
Wed-17-06-2015, 16:35 PM
First I will just correct Jim in a common mistake often made between Dovonx and Dovobet, he said "Dovonex is really the only other one that has approval in the UK that I am aware of .and that is a steroid ointment" however it as he had already stated earlier in his post it is "a vitamin D derivative" Like I said it's a common mistake and should you or anyone want to know the difference which you should if you are using them, this thread will help: Dovobet And Dovonex (What's the difference ?)

I should also point out that Jim does now the difference, he just worded it wrong.

But back to your questions, I don't think a dermatologist is going to give you the option of tablets straight away. You could be lucky, but I would imagine most dermatologists will want you to strictly follow their protocol with the application of one of the creams. They certainly won't offer you the Bio treatments as not only like Jim said it's expensive, but you also have to have it bad and have failed through other treatments first such as Methotrexate, Acitretin, Etc before being given it.

Again like I said you could be very lucky on what treatment you get offered, but as you say it's mild and you haven't seen a dermatologist for 42 years. So my thinking is they will want to try you on the creams (Silkis for example) or light treatment, but as you live six months of the year in Tenerife I doubt the Light therapy would be a suggestion.

All I would suggest is go for your first appointment with the dermatologist and see what they offer you first, others here can tell you what they think is best but we are only people sharing information none of us are medically trained and what works for one person may not work for another. A dermatologist will assess the extent of psoriasis and how it effects your quality of life, then they will work with you to find what is best suited to your case.

Good luck.
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#5
Wed-17-06-2015, 17:00 PM (This post was last modified: Wed-17-06-2015, 17:04 PM by jiml.)
(Wed-17-06-2015, 16:35 PM)Fred Wrote: First I will just correct Jim in a common mistake often made between Dovonx and Dovobet, he said "Dovonex is really the only other one that has approval in the UK that I am aware of .and that is a steroid ointment" however it as he had already stated earlier in his post it is "a vitamin D derivative" Like I said it's a common mistake and should you or anyone want to know the difference which you should if you are using them, this thread will help: Dovobet And Dovonex (What's the difference ?)

I should also point out that Jim does now the difference, he just worded it wrong.

But back to your questions, I don't think a dermatologist is going to give you the option of tablets straight away. You could be lucky, but I would imagine most dermatologists will want you to strictly follow their protocol with the application of one of the creams. They certainly won't offer you the Bio treatments as not only like Jim said it's expensive, but you also have to have it bad and have failed through other treatments first such as Methotrexate, Acitretin, Etc before being given it.

Again like I said you could be very lucky on what treatment you get offered, but as you say it's mild and you haven't seen a dermatologist for 42 years. So my thinking is they will want to try you on the creams (Silkis for example) or light treatment, but as you live six months of the year in Tenerife I doubt the Light therapy would be a suggestion.

All I would suggest is go for your first appointment with the dermatologist and see what they offer you first, others here can tell you what they think is best but we are only people sharing information none of us are medically trained and what works for one person may not work for another. A dermatologist will assess the extent of psoriasis and how it effects your quality of life, then they will work with you to find what is best suited to your case.

Good luck.

Thanks Fred for pointing the error out I had better edit that so it won't confuse anyone in the future  Thumb I
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,956
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#6
Wed-17-06-2015, 20:02 PM
(Wed-17-06-2015, 17:00 PM)jiml Wrote: Thanks Fred for pointing the error out I had better edit that so it won't confuse anyone in the future  Thumb I

Easy mistake Jim, I've done it myself.  78

I ended up telling myself the following

Dovobet is in the Red tube and Red = Warning! Be very careful and make sure you're 100% sure about what you are doing with this treatment

Dovonex is in the Blue tube and Blue = A sunny day so keep out of the sun whilst using, or at least cover up the part you are treating.
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,513
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#7
Wed-17-06-2015, 20:41 PM
I have only two warnings regarding the comments of both gentlemen above.
Methotrexate is a NO as is cyclosporine.
Both are very bad for the rest of your health, as you can read in several posts over here at the forum where people are quitting the MTX because it make them feel so bad.
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#8
Wed-17-06-2015, 21:07 PM
(Wed-17-06-2015, 20:41 PM)Caroline Wrote: I have only two warnings regarding the comments of both gentlemen above.
Methotrexate is a NO as is cyclosporine.
Both are very bad for the rest of your health, as you can read in several posts over here at the forum where people are quitting the MTX because it make them feel so bad.

I can only agree with you regarding the two drugs but unfortunately that is the way the British system works , you have to fail on these drugs before they will move you along to something else

I will also say there are also people on here who have had success with methotrexate , I'm not sure about cyclosporine though
Thanks for calling me a gentleman btw Thumb
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,956
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#9
Wed-17-06-2015, 21:08 PM
(Wed-17-06-2015, 20:41 PM)Caroline Wrote: I have only two warnings regarding the comments of both gentlemen above.
Methotrexate is a NO as is cyclosporine.
Both are very bad for the rest of your health, as you can read in several posts over here at the forum where people are quitting the MTX because it make them feel so bad.

I agree but he may not have much choice after reading his posts, he has tried the creams, he has not seen a dermatologist for 42 years, he is being treated in the UK (I'm assuming), he has mild psoriasis, so I'm thinking the dermatologist will follow the usual protocol for the UK and the second step will be Methotrexate.

We both may agree that it's not the way to go, but it's the way a dermatologist in the UK with such a case will go in my opinion.
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,513
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#10
Wed-17-06-2015, 21:14 PM
Anyway I wanted to give a warning.
So he will know what he will get. Medication that will make him sick. It's the system, but it will not say the system is good. One should use every opportunity to fight a system that makes you sick. A warned person counts for two.
Of course I state this in my own direct Dutch way. Confused sorry for that, I'll never learn.

Karaokeking, ask if the dermatologist himself would take the medication. I bet he will not as he too good knows what it Is.
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