Hi Quyeno! I just wanted to say welcome!!

(Mon-12-01-2015, 15:02 PM)Kat Wrote: Hi Quyeno!   I just wanted to say welcome!!

Hi Kat

Thanks!
Q

(Mon-12-01-2015, 14:54 PM)quyeno Wrote:

(Mon-12-01-2015, 13:55 PM)jiml Wrote: Here's a bit of reading also on here about Fumaderm

My intro Introduction Jiml

There are also these experiences to look at
My journey on furmederm starts
[Group Specific]
Should I come off Fumaderm?

There are many others on here some have had a good experience a few not so lucky and had to stop . But my feeling is it's very good and you have a night chance of success and if it works and you can reduce your tablets as I have (I'm now on 3 a day but some are on just 1 tablet as a maintenance dose)

From what I've read from those links, does the stomach cramps and gut problems subside over time? Do they ever go away completely the longer you're on the medication?  I think I could handle the hot flushes as it seems they are quite infrequent and only a short time.

Thanks
Q

hi Q
I can only speak from my experience and that was that the stomach intestinal cramps were never extreme on the odd occasion they doubled me over but they were fairly short lived and the longer I took the tablets the less they got I guess about 3 months of cramps but they only lasted about 10 to fifteen minutes and then subsided getting progressively less as time went on ... Beleive me I'm a wimp and if there had been any extreme discomfort I would have given up.... The flushes as with psorinovo are quite pleasant but if you are out a bit embarrassing
I haven't had any tummy problems for over two and a half years but the drug is still working well

(Mon-12-01-2015, 15:14 PM)jiml Wrote:

(Mon-12-01-2015, 14:54 PM)quyeno Wrote:

(Mon-12-01-2015, 13:55 PM)jiml Wrote: Here's a bit of reading also on here about Fumaderm

My intro Introduction Jiml

There are also these experiences to look at
My journey on furmederm starts
[Group Specific]
Should I come off Fumaderm?

There are many others on here some have had a good experience a few not so lucky and had to stop . But my feeling is it's very good and you have a night chance of success and if it works and you can reduce your tablets as I have (I'm now on 3 a day but some are on just 1 tablet as a maintenance dose)

From what I've read from those links, does the stomach cramps and gut problems subside over time? Do they ever go away completely the longer you're on the medication?  I think I could handle the hot flushes as it seems they are quite infrequent and only a short time.

Thanks
Q

hi Q
I can only speak from my experience and that was that the stomach intestinal cramps were never extreme on the odd occasion they doubled me over but they were fairly short lived and the longer I took the tablets the less they got I guess about 3 months of cramps but they only lasted about 10 to fifteen minutes and then subsided  getting progressively less as time went on ... Beleive me I'm a wimp and if there had been any extreme discomfort I would have given up.... The flushes as with psorinovo are quite pleasant but if you are out a bit embarrassing
I haven't had any tummy problems for over two and a half years but the drug is still working well

I don't know the ins and outs of this drugs, is it true its based on a natural substance?

(Mon-12-01-2015, 14:54 PM)quyeno Wrote:

(Mon-12-01-2015, 13:55 PM)jiml Wrote: Here's a bit of reading also on here about Fumaderm

My intro Introduction Jiml

There are also these experiences to look at
My journey on furmederm starts
[Group Specific]
Should I come off Fumaderm?

There are many others on here some have had a good experience a few not so lucky and had to stop . But my feeling is it's very good and you have a night chance of success and if it works and you can reduce your tablets as I have (I'm now on 3 a day but some are on just 1 tablet as a maintenance dose)

From what I've read from those links, does the stomach cramps and gut problems subside over time? Do they ever go away completely the longer you're on the medication?  I think I could handle the hot flushes as it seems they are quite infrequent and only a short time.

Thanks
Q

Q.. The flushes are no big deal. They are even a bit fun.
The intestine thing depends on the number of pills you finally have to take. They are not constant but vary a bit. I still cannot determine in which situations it is but it may have a relation to what you have eaten.

Stomach problems are reported by Fumaderm users. Jim doesn't have them but he is only on 1x120mg.
There are no Stomach problems with Psorinovo. I am on 6x120mg and only have occasional intestine problems.

(Mon-12-01-2015, 15:30 PM)quyeno Wrote:

(Mon-12-01-2015, 15:14 PM)jiml Wrote:

(Mon-12-01-2015, 14:54 PM)quyeno Wrote:

(Mon-12-01-2015, 13:55 PM)jiml Wrote: Here's a bit of reading also on here about Fumaderm

My intro Introduction Jiml

There are also these experiences to look at
My journey on furmederm starts
[Group Specific]
Should I come off Fumaderm?

There are many others on here some have had a good experience a few not so lucky and had to stop . But my feeling is it's very good and you have a night chance of success and if it works and you can reduce your tablets as I have (I'm now on 3 a day but some are on just 1 tablet as a maintenance dose)

From what I've read from those links, does the stomach cramps and gut problems subside over time? Do they ever go away completely the longer you're on the medication?  I think I could handle the hot flushes as it seems they are quite infrequent and only a short time.

Thanks
Q

hi Q
I can only speak from my experience and that was that the stomach intestinal cramps were never extreme on the odd occasion they doubled me over but they were fairly short lived and the longer I took the tablets the less they got I guess about 3 months of cramps but they only lasted about 10 to fifteen minutes and then subsided  getting progressively less as time went on ... Beleive me I'm a wimp and if there had been any extreme discomfort I would have given up.... The flushes as with psorinovo are quite pleasant but if you are out a bit embarrassing
I haven't had any tummy problems for over two and a half years but the drug is still working well

I don't know the ins and outs of this drugs, is it true its based on a natural substance?

To be honest my knowledge is fairly limited regarding the chemical makeup of Fumaderm and where it comes from but caroline is our expert on FAE 's and I'm sure she will enlighten you more than I can. I have read her posts about it but I am not a chemist and I don't want to give you any misleading information
Jim

Dimethylfumarate is a way a natural substance, but you should have to read my thread on Dimethylfumarates and Psoriasis, then you know the details.
Fumarate's are a part of the energy cycle in your cells.

I have just had a read about importing medical drugs and I can't see anywhere where it says you can't . What it does say if you do you will have no recourse in this country if things go wrong
If you google "can I bring unlicensed drugs into the UK" there are some answers there

(Mon-12-01-2015, 16:27 PM)jiml Wrote: What it does say if you do you will have no recourse in this country if things go wrong

Thanks for that Jim and to be honest I don't blame them, If you buy from abroad then you can't expect your own country to look after you. Not that Psorinovo should give you any problem, but they are covering their own backs.

So I would imagine you would also have to pay for your own regular blood tests too then?

Thanks for your help so far, it's much appreciated.

Reading the NHS document regarding Fumaderm, it suggests that Fumaderm be used when other systemic drugs have been tried and deemed not useful. So it seems like I might have to try Acetretin first? or is this not the case?