If your only option is poison, why not drink instead? At least you had fun before you hurl in the toilet. There, see, I just solved there problem.

(Sat-11-03-2017, 08:23 AM)mataribot Wrote: If your only option is poison, why not drink instead? At least you had fun before you hurl in the toilet. There, see, I just solved there problem.

True, that is a sensible reason to start drinking Mati, you have a point there.

The thing is, that they don't have a problem, but they are talking us into a problem, and they are smearing us as a group. It is a kind of discrimination.
Imagine your dermatologist reads and believes the study, and next time he looks at you with kind of a disgusting look, his professional judgement will then be biased. As even a dermatologist is a human being and not free from influence.

I agree, though I have read quite a few articles which show the nhs here in uk read and analyse studies and then make their own judgement on whether they think it should be taken notice of.
I wonder whether it's ok that this study using general stats rather than a control group, possibly so but I would think a control group would have been a good idea.

(Sat-11-03-2017, 08:17 AM)Caroline Wrote: Well basically this research is tendentionally bad. It places us as a group in a very bad daylight. I don't like that. It makes me   . As it even very well may be that Psoriasis sufferers change into a healthier way of living as that helps against the psoriasis.  
Wouldn't it be time to react on this research on e.g. Twitter, to protest against it?

What do you think of that?

I think you can Tweet anything on Psoriasis Club as much as you like and Tweets are welcome as it brings us visitors. But as for if anyone will listen that is a different matter.

If it would make you feel better then go for it. I have Tweeted the study on @PsoriasisClub you could quote that or this thread in your own tweet.

You're right, it does paint us in a bad light. I would be interested to know if they have done similar study for other chronic conditions and would the results differ?

(Sat-11-03-2017, 16:43 PM)AmandaL Wrote: You're right, it does paint us in a bad light. I would be interested to know if they have done similar study for other chronic conditions and would the results differ?

No they didn't bother to do a comparison, and as it was a paper-based self-reported anonymous questionnaire od only 102 people I wouldn't read to much into it.

Psoriasis patients have enough to put up with without being branded us as addicts without much to back it up.

However in it's defence I do think psoriasis has in the past made me drink or smoke more.

My comment was supposed to be humorous sarcasm. We have an expensive disease so they are treating use like a pile. Well, the researchers themselves can tossed in a trash can.

Does sex and gin count as addiction.

(Sat-11-03-2017, 18:51 PM)D Foster Wrote: Does sex and gin count as addiction.

Well Gin would be alcohol and although not mentioned, I'm sure sex is an addiction to some people.

I may be the loner on this, but I'm not offended by the survey.  I don't think it implies that people with psoriasis HAVE addictions, rather can the stigma or depression from psoriasis cause some to fall to addiction when they otherwise wouldn't.  

Psoriasis can be a difficult disease from a social standpoint, causing some to retreat to their safe place.  For some people that COULD lead to over indulgence in alcohol, drugs, over eating, etc to make them feel better.  The problem with the survey and to get an accurate account would be trying to figure out if psoriasis patients who do have addictions would have had them anyway or not.  I know they list percentages of psoriasis sufferers vs not and such but I just don't think it can be accurately surveyed as some of the psoriasis sufferers may have been addicts without the psoriasis. At least that's how I see it.