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		<title><![CDATA[Psoriasis Club - Introductions]]></title>
		<link>https://psoriasisclub.org/</link>
		<description><![CDATA[Psoriasis Club - https://psoriasisclub.org]]></description>
		<pubDate>Fri, 01 May 2026 23:19:49 +0000</pubDate>
		<generator>MyBB</generator>
		<item>
			<title><![CDATA[Introducing... Melinda]]></title>
			<link>https://psoriasisclub.org/thread-8465.html</link>
			<pubDate>Mon, 20 Apr 2026 18:51:10 -0400</pubDate>
			<dc:creator><![CDATA[<a href="https://psoriasisclub.org/member.php?action=profile&uid=3278">williamsMeli</a>]]></dc:creator>
			<guid isPermaLink="false">https://psoriasisclub.org/thread-8465.html</guid>
			<description><![CDATA[Melinda (Mel) here. I stumbled on this resource as I was digging into the rabbit hole of Low Dose Naltrexone. I just started taking 0.5 mg 3 days ago for multiple reasons, scalp psoriasis being a big one. I also have an area on my scapula that is so so itchy and I am pretty sure it guttate. It also has paresthesia, like pins and needles under the skin in that area. My derm recommended Otezla but I am concerned about side effects with that. I am pleased that some of the limited studies show even a little hope that LDN can work. We shall see. Also, planning on a sober summer and giving up my evening IPA is no small sacrifice. ?  So glad this forum is available and I look forward to learning more.]]></description>
			<content:encoded><![CDATA[Melinda (Mel) here. I stumbled on this resource as I was digging into the rabbit hole of Low Dose Naltrexone. I just started taking 0.5 mg 3 days ago for multiple reasons, scalp psoriasis being a big one. I also have an area on my scapula that is so so itchy and I am pretty sure it guttate. It also has paresthesia, like pins and needles under the skin in that area. My derm recommended Otezla but I am concerned about side effects with that. I am pleased that some of the limited studies show even a little hope that LDN can work. We shall see. Also, planning on a sober summer and giving up my evening IPA is no small sacrifice. ?  So glad this forum is available and I look forward to learning more.]]></content:encoded>
		</item>
		<item>
			<title><![CDATA[Hi, my name is Waine]]></title>
			<link>https://psoriasisclub.org/thread-8387.html</link>
			<pubDate>Sat, 03 Jan 2026 02:55:23 -0500</pubDate>
			<dc:creator><![CDATA[<a href="https://psoriasisclub.org/member.php?action=profile&uid=3262">Waine</a>]]></dc:creator>
			<guid isPermaLink="false">https://psoriasisclub.org/thread-8387.html</guid>
			<description><![CDATA[Hi,<br />
<br />
I'm from Cape Town, South Africa and am in my mid 50s. Have been diagnosed with PsA since 2020 but have had it probably since 2007 when it was first diagnosed as carpal tunneil syndrome. I've recently begun treatment with Humira after being on Methotrexate, Salazopyrin and anti-inflammatory pills. Unfortunately these caused my to develop Chronic Kidney Disease and Liver fibrosis, causing the need to switch. I am also on Prednisone, although my Rheumatologist wants to phase it out once the Humira is working effectively. <br />
<br />
It's nice to find a forum where other people can share experiences so that I don't feel quite so alone in the struggle, thank you to the founders and members!]]></description>
			<content:encoded><![CDATA[Hi,<br />
<br />
I'm from Cape Town, South Africa and am in my mid 50s. Have been diagnosed with PsA since 2020 but have had it probably since 2007 when it was first diagnosed as carpal tunneil syndrome. I've recently begun treatment with Humira after being on Methotrexate, Salazopyrin and anti-inflammatory pills. Unfortunately these caused my to develop Chronic Kidney Disease and Liver fibrosis, causing the need to switch. I am also on Prednisone, although my Rheumatologist wants to phase it out once the Humira is working effectively. <br />
<br />
It's nice to find a forum where other people can share experiences so that I don't feel quite so alone in the struggle, thank you to the founders and members!]]></content:encoded>
		</item>
		<item>
			<title><![CDATA[I have just joined. Psoriasis diagnosed a couple of months ago]]></title>
			<link>https://psoriasisclub.org/thread-8358.html</link>
			<pubDate>Tue, 28 Oct 2025 13:28:11 -0400</pubDate>
			<dc:creator><![CDATA[<a href="https://psoriasisclub.org/member.php?action=profile&uid=3256">Patrick Baines</a>]]></dc:creator>
			<guid isPermaLink="false">https://psoriasisclub.org/thread-8358.html</guid>
			<description><![CDATA[Hello everyone,<br />
<br />
I have a diagnosis of psoriasis, made a couple of months ago.  Legs, thighs, arms, hands and feet.   Using Enstilar at the moment which helps.<br />
<br />
I had a diagnosis of atopic eczema, full body, about a year ago,  got better over time, then bright red rectangular patch on both forelegs, no-one very sure what that was, and  dermatology said varicose eczema, but I think that was wrong. That faded with steroid cream.  Now had a rather typical psoriasis rash.<br />
<br />
So I know its early days for me.... I am 78 years old. I also have severe Chronic Kidney failure,  no dialysis though yet.<br />
<br />
<br />
<br />
I am curious to know if the progression from atopic eczema to psoriasis is common, or recognised, or unusual.  <br />
<br />
Thank you for reading this, and for any reply<br />
<br />
Patrick]]></description>
			<content:encoded><![CDATA[Hello everyone,<br />
<br />
I have a diagnosis of psoriasis, made a couple of months ago.  Legs, thighs, arms, hands and feet.   Using Enstilar at the moment which helps.<br />
<br />
I had a diagnosis of atopic eczema, full body, about a year ago,  got better over time, then bright red rectangular patch on both forelegs, no-one very sure what that was, and  dermatology said varicose eczema, but I think that was wrong. That faded with steroid cream.  Now had a rather typical psoriasis rash.<br />
<br />
So I know its early days for me.... I am 78 years old. I also have severe Chronic Kidney failure,  no dialysis though yet.<br />
<br />
<br />
<br />
I am curious to know if the progression from atopic eczema to psoriasis is common, or recognised, or unusual.  <br />
<br />
Thank you for reading this, and for any reply<br />
<br />
Patrick]]></content:encoded>
		</item>
		<item>
			<title><![CDATA[Long time sufferer, first time forum poster]]></title>
			<link>https://psoriasisclub.org/thread-8192.html</link>
			<pubDate>Thu, 30 Jan 2025 23:18:19 -0500</pubDate>
			<dc:creator><![CDATA[<a href="https://psoriasisclub.org/member.php?action=profile&uid=3233">IAmNotMySkin</a>]]></dc:creator>
			<guid isPermaLink="false">https://psoriasisclub.org/thread-8192.html</guid>
			<description><![CDATA[Hello all,<br />
My name is Scott. I'm 59 and have had psoriasis since I was seven. It didn't take long to get severe, which made my teen years rather challenging. (Diagnosed with Psoriatic arthritis in mid-twenties.) Needless to say I've had quite a few years to learn to deal with it. I have it over most of my body, mostly thin, red, with less flaking, but other spots thicker with lots of flakes. Frankly, I can remember what it was like not to have this disease.<br />
<br />
I've been through many doctors, tried many treatments, (no biologics yet,) and don't have much faith in the safety of the newer stuff. (You might say I've become a bit 'jaded' with the medical establishment's approach to treating my condition over the last 50 years.) I feel like my best path is through diet. (Keto or Carnivore.)<br />
<br />
For a long while I thought I would go through this life on my own, but at about 30 years old I met a wonderful woman who was able to see past the 'surface' and love me for who I am. We have two kids, and yes, I worry about them developing this condition, but so far it hasn't happened.<br />
<br />
I've learned a great about myself and other people in coping with psoriasis, and haven't escaped the emotional and psychological effects I'm sure most of you understand, but all in all, my skin and I have come to an understanding: It's going to do what it's going to do, and I'm not going to let it ruin my life.<br />
<br />
I'm very happy to talk to anyone about it on here, so don't be a stranger.]]></description>
			<content:encoded><![CDATA[Hello all,<br />
My name is Scott. I'm 59 and have had psoriasis since I was seven. It didn't take long to get severe, which made my teen years rather challenging. (Diagnosed with Psoriatic arthritis in mid-twenties.) Needless to say I've had quite a few years to learn to deal with it. I have it over most of my body, mostly thin, red, with less flaking, but other spots thicker with lots of flakes. Frankly, I can remember what it was like not to have this disease.<br />
<br />
I've been through many doctors, tried many treatments, (no biologics yet,) and don't have much faith in the safety of the newer stuff. (You might say I've become a bit 'jaded' with the medical establishment's approach to treating my condition over the last 50 years.) I feel like my best path is through diet. (Keto or Carnivore.)<br />
<br />
For a long while I thought I would go through this life on my own, but at about 30 years old I met a wonderful woman who was able to see past the 'surface' and love me for who I am. We have two kids, and yes, I worry about them developing this condition, but so far it hasn't happened.<br />
<br />
I've learned a great about myself and other people in coping with psoriasis, and haven't escaped the emotional and psychological effects I'm sure most of you understand, but all in all, my skin and I have come to an understanding: It's going to do what it's going to do, and I'm not going to let it ruin my life.<br />
<br />
I'm very happy to talk to anyone about it on here, so don't be a stranger.]]></content:encoded>
		</item>
		<item>
			<title><![CDATA[Hi, I'm Paul]]></title>
			<link>https://psoriasisclub.org/thread-8135.html</link>
			<pubDate>Sun, 17 Nov 2024 17:17:24 -0500</pubDate>
			<dc:creator><![CDATA[<a href="https://psoriasisclub.org/member.php?action=profile&uid=3229">paul1961</a>]]></dc:creator>
			<guid isPermaLink="false">https://psoriasisclub.org/thread-8135.html</guid>
			<description><![CDATA[Glad to be here.  I hope that I can share my 51 years of experience as someone living with Psoriasis.   As my conditioned has worsened, I hope to access the knowledge and experiences you all have.]]></description>
			<content:encoded><![CDATA[Glad to be here.  I hope that I can share my 51 years of experience as someone living with Psoriasis.   As my conditioned has worsened, I hope to access the knowledge and experiences you all have.]]></content:encoded>
		</item>
		<item>
			<title><![CDATA[Psoriasis/Psoriatic Arthritis is the bane of my existence.]]></title>
			<link>https://psoriasisclub.org/thread-8134.html</link>
			<pubDate>Sat, 16 Nov 2024 01:14:54 -0500</pubDate>
			<dc:creator><![CDATA[<a href="https://psoriasisclub.org/member.php?action=profile&uid=3227">flecksable_flyer</a>]]></dc:creator>
			<guid isPermaLink="false">https://psoriasisclub.org/thread-8134.html</guid>
			<description><![CDATA[Hello, fellow flakeys. Long-time sufferer here. Psoriasis and psoriatic arthritis has definitely made a dent in my life. I'm finally in somewhat of a remission, but I tend to develop a tolerance to meds over time. At least with all of the new meds they keep coming up with, it leaves me options for finding new ones.<br />
<br />
I used to be married, lived on a farm, and took care of kids, cats, dogs, horses, sheep, rabbits, and a few chickens while working as a kennel attendant in a veterinarian's office. Now I'm divorced, unemployed, on disability, and live in a tiny house with a roommate and her kid. <br />
<br />
I do have two dogs, but I lost my two cats in the last couple of years and haven't found new ones that need homes yet.<br />
<br />
I'm finally back to my favorite hobby (cross-stitch) after a bad flare starting last year. The Cosentyx has done wonders, but I'll never be as active as I once was. I've learned to slow down, but it hasn't been easy. <br />
<br />
I hope everyone is doing well and finding what treatment works best for them. Take care and I'll see you around.]]></description>
			<content:encoded><![CDATA[Hello, fellow flakeys. Long-time sufferer here. Psoriasis and psoriatic arthritis has definitely made a dent in my life. I'm finally in somewhat of a remission, but I tend to develop a tolerance to meds over time. At least with all of the new meds they keep coming up with, it leaves me options for finding new ones.<br />
<br />
I used to be married, lived on a farm, and took care of kids, cats, dogs, horses, sheep, rabbits, and a few chickens while working as a kennel attendant in a veterinarian's office. Now I'm divorced, unemployed, on disability, and live in a tiny house with a roommate and her kid. <br />
<br />
I do have two dogs, but I lost my two cats in the last couple of years and haven't found new ones that need homes yet.<br />
<br />
I'm finally back to my favorite hobby (cross-stitch) after a bad flare starting last year. The Cosentyx has done wonders, but I'll never be as active as I once was. I've learned to slow down, but it hasn't been easy. <br />
<br />
I hope everyone is doing well and finding what treatment works best for them. Take care and I'll see you around.]]></content:encoded>
		</item>
		<item>
			<title><![CDATA[Re introduction]]></title>
			<link>https://psoriasisclub.org/thread-8131.html</link>
			<pubDate>Wed, 06 Nov 2024 22:13:57 -0500</pubDate>
			<dc:creator><![CDATA[<a href="https://psoriasisclub.org/member.php?action=profile&uid=129">KyPrincess</a>]]></dc:creator>
			<guid isPermaLink="false">https://psoriasisclub.org/thread-8131.html</guid>
			<description><![CDATA[Hey everyone,<br />
<br />
It's been a very long while. Sorry I have been away. I am struggling for a while with thing going on in my life. Lost my brother in 2021 and lost my dad in 2023. My plaque psoriasis are flaring up. This past July I was diagnosed with psoriatic arthritis and fibromyalgia.  Currently onTriamcinolone ointment and methotrexate.<br />
 Sarah]]></description>
			<content:encoded><![CDATA[Hey everyone,<br />
<br />
It's been a very long while. Sorry I have been away. I am struggling for a while with thing going on in my life. Lost my brother in 2021 and lost my dad in 2023. My plaque psoriasis are flaring up. This past July I was diagnosed with psoriatic arthritis and fibromyalgia.  Currently onTriamcinolone ointment and methotrexate.<br />
 Sarah]]></content:encoded>
		</item>
		<item>
			<title><![CDATA[My intro by beachbum]]></title>
			<link>https://psoriasisclub.org/thread-8091.html</link>
			<pubDate>Sat, 31 Aug 2024 12:59:31 -0400</pubDate>
			<dc:creator><![CDATA[<a href="https://psoriasisclub.org/member.php?action=profile&uid=3210">beachbum</a>]]></dc:creator>
			<guid isPermaLink="false">https://psoriasisclub.org/thread-8091.html</guid>
			<description><![CDATA[I've had plaque psoriasis since 1983. In the past year, a rheumatoligist came to believe I have psoriatic arthritis, based on chronic  stiff joint symptoms and xrays showing mild joint space shrinkage. Blood tests to support this were all negative. She also suggested I try Rinvoq and provided a 30 day free trial. I've not taken this drug. Frankly, I'm not sure the pain is bad enough and the side effects for someone my age (over 65) are a bit alarming. I'm curious of what others may have experienced in combating my issues. The score I get on this website is 13 and the psoriasis plaquing bothers me much less than the joint pain.]]></description>
			<content:encoded><![CDATA[I've had plaque psoriasis since 1983. In the past year, a rheumatoligist came to believe I have psoriatic arthritis, based on chronic  stiff joint symptoms and xrays showing mild joint space shrinkage. Blood tests to support this were all negative. She also suggested I try Rinvoq and provided a 30 day free trial. I've not taken this drug. Frankly, I'm not sure the pain is bad enough and the side effects for someone my age (over 65) are a bit alarming. I'm curious of what others may have experienced in combating my issues. The score I get on this website is 13 and the psoriasis plaquing bothers me much less than the joint pain.]]></content:encoded>
		</item>
		<item>
			<title><![CDATA[A reintroduction]]></title>
			<link>https://psoriasisclub.org/thread-8089.html</link>
			<pubDate>Tue, 27 Aug 2024 15:51:57 -0400</pubDate>
			<dc:creator><![CDATA[<a href="https://psoriasisclub.org/member.php?action=profile&uid=1207">pingu</a>]]></dc:creator>
			<guid isPermaLink="false">https://psoriasisclub.org/thread-8089.html</guid>
			<description><![CDATA[It is a very long time since I have been here, I kind of lost track of it and searched a few times but didn't manage to find the site but today I have.<br />
<br />
So whats new! I was on methotrexate and eventually got taken off it. I was given skilerance that didn't work but my consultant has no record of it so has prescribed it again. I need to get the pharmacy to write to him telling him that I have already tried it! I had acretin that nearly killed me. You know when you have a blood test and within hours your GP and consultant ring you and tell you to stop taking the drug immediately and to go to hospital the next day for tests, I think it was my neutrophils cells had plummeted so I had basically no immune system, something like that anyway. Then I went on cyclosporine which I have just been taken off.<br />
<br />
Life is OK learned to cope with psoriasis a long time ago and it has generally been a lot more manageable apart form about 12 months after I was taken off methotrexate. I know I know its a bad drug but worked for me until my liver needed to recover a little.<br />
<br />
If I don't end up on the skilerance I will be on biologicals.<br />
<br />
Anyway I am glad I found you.]]></description>
			<content:encoded><![CDATA[It is a very long time since I have been here, I kind of lost track of it and searched a few times but didn't manage to find the site but today I have.<br />
<br />
So whats new! I was on methotrexate and eventually got taken off it. I was given skilerance that didn't work but my consultant has no record of it so has prescribed it again. I need to get the pharmacy to write to him telling him that I have already tried it! I had acretin that nearly killed me. You know when you have a blood test and within hours your GP and consultant ring you and tell you to stop taking the drug immediately and to go to hospital the next day for tests, I think it was my neutrophils cells had plummeted so I had basically no immune system, something like that anyway. Then I went on cyclosporine which I have just been taken off.<br />
<br />
Life is OK learned to cope with psoriasis a long time ago and it has generally been a lot more manageable apart form about 12 months after I was taken off methotrexate. I know I know its a bad drug but worked for me until my liver needed to recover a little.<br />
<br />
If I don't end up on the skilerance I will be on biologicals.<br />
<br />
Anyway I am glad I found you.]]></content:encoded>
		</item>
		<item>
			<title><![CDATA[Introduction by Trampledrosie]]></title>
			<link>https://psoriasisclub.org/thread-8050.html</link>
			<pubDate>Wed, 22 May 2024 14:05:16 -0400</pubDate>
			<dc:creator><![CDATA[<a href="https://psoriasisclub.org/member.php?action=profile&uid=3203">Trampledrosie</a>]]></dc:creator>
			<guid isPermaLink="false">https://psoriasisclub.org/thread-8050.html</guid>
			<description><![CDATA[Hi, I found this thread through a search on ppp. I have had this increasingly debilitating condition for about 4 years. Started on one foot as a small patch and is now covering most of the soles of both feet and now seems to be creeping up the sides and tops of my feet, maybe even my ankles. I have been doing light therapy for 6 months and it has helped a tiny bit on my soles. It is so painful, sore, itchy that I can’t wear socks or shoes and I have become isolated to the point of rarely leaving my house. I am on disability due to other conditions. I think it started as an autoimmune reaction to having cancer which was treated, now 3 years since last treatment. Doctors tell me to go live my best life now that cancer is gone but they don’t understand how painful this psoriasis is. I can make it to the grocery store once in a while. After about 20 mins on my feet they are painful, sore, like someone is sticking hot pokers in me. I also have neuropathy from cancer treatment so it feels like bugs are crawling up my legs most of the time. I gained a lot of weight during cancer and can’t walk to exercise which also helps other pain. I am so frustrated so I am hoping I can find some help or support or ideas here. Hoping not to be judged too harshly as I do still smoke. I don’t drink much alcohol. I don’t have much energy for cooking these days so that has been awful. My stress is through the roof and I am not sure what to do anymore as I am often so depressed that I don’t even get dressed and lose myself in tv or video games. My life has gotten so small. Hoping that I can gain some motivation and find some ideas to try and at least get back on my feet.]]></description>
			<content:encoded><![CDATA[Hi, I found this thread through a search on ppp. I have had this increasingly debilitating condition for about 4 years. Started on one foot as a small patch and is now covering most of the soles of both feet and now seems to be creeping up the sides and tops of my feet, maybe even my ankles. I have been doing light therapy for 6 months and it has helped a tiny bit on my soles. It is so painful, sore, itchy that I can’t wear socks or shoes and I have become isolated to the point of rarely leaving my house. I am on disability due to other conditions. I think it started as an autoimmune reaction to having cancer which was treated, now 3 years since last treatment. Doctors tell me to go live my best life now that cancer is gone but they don’t understand how painful this psoriasis is. I can make it to the grocery store once in a while. After about 20 mins on my feet they are painful, sore, like someone is sticking hot pokers in me. I also have neuropathy from cancer treatment so it feels like bugs are crawling up my legs most of the time. I gained a lot of weight during cancer and can’t walk to exercise which also helps other pain. I am so frustrated so I am hoping I can find some help or support or ideas here. Hoping not to be judged too harshly as I do still smoke. I don’t drink much alcohol. I don’t have much energy for cooking these days so that has been awful. My stress is through the roof and I am not sure what to do anymore as I am often so depressed that I don’t even get dressed and lose myself in tv or video games. My life has gotten so small. Hoping that I can gain some motivation and find some ideas to try and at least get back on my feet.]]></content:encoded>
		</item>
		<item>
			<title><![CDATA[Looking for advice]]></title>
			<link>https://psoriasisclub.org/thread-7927.html</link>
			<pubDate>Sun, 03 Dec 2023 13:12:05 -0500</pubDate>
			<dc:creator><![CDATA[<a href="https://psoriasisclub.org/member.php?action=profile&uid=3179">kerryann</a>]]></dc:creator>
			<guid isPermaLink="false">https://psoriasisclub.org/thread-7927.html</guid>
			<description><![CDATA[Hi,<br />
<br />
My name is Kathy and I'm posting for my daughter. She has what I believe is some form of psoriasis. She has been to her GP about 6 times and 3 times to a Dermatologist who said she has atopic dermatitis but I would stake my life on the fact that he is wrong. I've known people with psoriasis and what she has is worse than anything I've ever seen. This morning her pajamas were stuck to her body from skin weeping and bleeding. Her acupuncture DR her body has damp heat. Last week her GP finally took blood and she is supposed to get the results in the next few days. I feel so helpless. Everything I've tried to do for her has not worked. Does anyone have any advice?]]></description>
			<content:encoded><![CDATA[Hi,<br />
<br />
My name is Kathy and I'm posting for my daughter. She has what I believe is some form of psoriasis. She has been to her GP about 6 times and 3 times to a Dermatologist who said she has atopic dermatitis but I would stake my life on the fact that he is wrong. I've known people with psoriasis and what she has is worse than anything I've ever seen. This morning her pajamas were stuck to her body from skin weeping and bleeding. Her acupuncture DR her body has damp heat. Last week her GP finally took blood and she is supposed to get the results in the next few days. I feel so helpless. Everything I've tried to do for her has not worked. Does anyone have any advice?]]></content:encoded>
		</item>
		<item>
			<title><![CDATA[Bimzelx intro from redsquirrel]]></title>
			<link>https://psoriasisclub.org/thread-7832.html</link>
			<pubDate>Tue, 12 Sep 2023 06:49:37 -0400</pubDate>
			<dc:creator><![CDATA[<a href="https://psoriasisclub.org/member.php?action=profile&uid=3171">redsquirrel</a>]]></dc:creator>
			<guid isPermaLink="false">https://psoriasisclub.org/thread-7832.html</guid>
			<description><![CDATA[Hi all - I was looking for any info as to whether or not common side effects of bimzelx - wear off - go away!<br />
Best wishes to Fred - I really hope your treatment makes you better.<br />
My own story is that I am an allergic type - Im the awkward one who always gets those 'rare' side effects! <br />
<br />
I have had 2 loading doses so far of Bimzelx and I have not taken my third one - I am told I can skip a dose and take the next one when I feel better...<br />
<br />
mmm...when I feel better....my story is below - not necessary to read! its just a brief history in time - of infections...<br />
<br />
My question is lovely people - is there anyone out there who has had similar common side effects with bimzelx - and...did they wear off? Im just getting zero help from the people running the study Im on - or the dermatologists - I feel like Im being kept in the dark...the manufactrures and so called yellow card scheme must surely have data? after all - they state the side effects....maybe I should go to them?<br />
any tips greatly apprecitated - Ive been so ill I just dont know whether to continue this or not...<br />
<br />
best wishes<br />
<br />
<br />
since starting bioligics in february - Ive had 4 loads of anti biotics for infections - one a throat thing the others UTI's. <br />
Ive been in a lot of pain with un diagnosed stomach and digestion problems so await test results for IBS and coeliac. Oh I also have medication now for oral thrush.... I had an allergic reaction to amgevita and started bimzelx in April this year. Ive felt ill ever since...this is not me!]]></description>
			<content:encoded><![CDATA[Hi all - I was looking for any info as to whether or not common side effects of bimzelx - wear off - go away!<br />
Best wishes to Fred - I really hope your treatment makes you better.<br />
My own story is that I am an allergic type - Im the awkward one who always gets those 'rare' side effects! <br />
<br />
I have had 2 loading doses so far of Bimzelx and I have not taken my third one - I am told I can skip a dose and take the next one when I feel better...<br />
<br />
mmm...when I feel better....my story is below - not necessary to read! its just a brief history in time - of infections...<br />
<br />
My question is lovely people - is there anyone out there who has had similar common side effects with bimzelx - and...did they wear off? Im just getting zero help from the people running the study Im on - or the dermatologists - I feel like Im being kept in the dark...the manufactrures and so called yellow card scheme must surely have data? after all - they state the side effects....maybe I should go to them?<br />
any tips greatly apprecitated - Ive been so ill I just dont know whether to continue this or not...<br />
<br />
best wishes<br />
<br />
<br />
since starting bioligics in february - Ive had 4 loads of anti biotics for infections - one a throat thing the others UTI's. <br />
Ive been in a lot of pain with un diagnosed stomach and digestion problems so await test results for IBS and coeliac. Oh I also have medication now for oral thrush.... I had an allergic reaction to amgevita and started bimzelx in April this year. Ive felt ill ever since...this is not me!]]></content:encoded>
		</item>
		<item>
			<title><![CDATA[This forum active? My introduction LONG]]></title>
			<link>https://psoriasisclub.org/thread-7792.html</link>
			<pubDate>Thu, 20 Jul 2023 11:48:31 -0400</pubDate>
			<dc:creator><![CDATA[<a href="https://psoriasisclub.org/member.php?action=profile&uid=3162">SquidBro</a>]]></dc:creator>
			<guid isPermaLink="false">https://psoriasisclub.org/thread-7792.html</guid>
			<description><![CDATA[Hello,<br />
<br />
Just found this forum, have had psoriasis for about ten years but never really looked for a forum before. But in the past few years its progressed to an intolerable point and ive been struggling.<br />
<br />
Bit of background on me, 29 y/o male, live in Ontario, Canada. I consider myself very fit and healthy. <br />
<br />
I has psoriasis start around the ears and nose at first. That was easily remedied with any lotion. I really first noticed persistent psoriasis on my elbows and then knees. Then my belly button as well. I had a few spots pop up here and there on torso and arms but just adjusted my diet to eat more healthy meals (not eating a cookie for breakfast) and was able to control it pretty well with just a little steroid cream and basic 80/20 kind of diet (eat healthy 80% of time, eat junky food 20% of time), and no restrictions. Sometimes it would flare and be extra flaky but some diet correction and salt baths would get it under control. Over the years a new spot would develop here and there, on my fore arms, shins, torso, the forearms and shins would come on as a result of damage to the skin (cuts) that despite my "healthy lifestyle" wouldn't go away. Admittedly I did smoke on and off and drink from time to time for many years and often eat anything i felt like but I was active and felt like anytime i could reel it in and control flares. It was annoying but i could deal with it and enjoy going to the beach and wearing shorts and t shirts.<br />
<br />
In the past 2ish years my psoriasis kind of exploded. It basically covered my forearms, spots popped up all over the inside of my forearms, all over my upper arms, all over my stomach and lower back, my entire lower legs, not just on my shins but all over my calves, and my upper legs as well. Id often get flares and spots on my forehead and other spots on my face around my eyes. I had already quit smoking by this time but was drinking every week or two in the summer before this happened. <br />
<br />
I am still not sure why it got so bad. I shortly there after decided I needed to completely revamp my diet. I was eating a pretty carb heavy diet before, oats or gluten free hot cereal with fruit, peanut butter &amp; jelly sandwiches, sweet potatoes, beats, beans, quinoa, rice. Only protein I was eating really was chicken or fish for dinner and paired with rice usually, or made into tacos with cheese and other goodies you'd eat with tacos. All sorts of things but always "healthy". Often having snacks/dessert too though. Chocolate, cookies, peanut m&amp;m's. But I felt I needed to become more strict and get in more protein as well as I have always been very active and lean and muscular. I got diet guidance from the "REMOVED" mostly. I started eating eggs for breakfast with avocado, usually chicken for lunch with rice or potatoes, started eating beef after having pretty much avoided it for years, raw and unsalted nuts, yogurt, whey protein. I decided to give it some time to adjust. It didn't really accelerate my psoriasis but it kind of just stayed pretty bad and spots grew and grew. About a year ago I even went on a probiotic and did a few rounds of gut supplements for leaky gut. Not really any affect on the PSO.<br />
<br />
I always felt tired and bogged down before. Since eating like this I feel stronger and more on it. I feel like a beast mostly. But my psoriasis isn't getting better. I still pretty much eat like this except now I eat oats again, less eggs, cut the yogurt, but always try to balance carbs, protein and fats with all my meals. Its the best I have felt physically. I always do coffee in the morning after water. For breakfast I do a big bowl of oats with some fruit, lunch is beef or chicken or sardines with rice usually (just switched from basmati to brown), dinner is chicken or beef with potatoes (did white and yellow potatoes for a long time, just switched to sweet potatoes), i get snacks in, usually fruit, or banana bread i make with oats, banana, eggs, coconut oil or butter, little maple syrup or dark chocolate. <br />
<br />
1 - 3 months ago I've found a bit of healing happening. Spots cleared on my lower legs, forearms, face. And alot of spots became less flaky and scally. Stopped waking up to loads of skin in my bed. I was eating whey protein everyday and gluten by way of oats and loads of potatoes and nuts. But it seems to have gone back to being not great again. Think its cause I started having a few whiskeys on saturday nights watching ufc for too many weeks in a row. Still, ive stopped but over a month ago but still find it to be very irritated. I also stopped the whey and try to do gluten free oats. Ive also started eating more veggies as well. <br />
<br />
I am just not sure where to go from here. Thinking of cutting the coffee and beef. Already have been upping the veggie intake. I definitely enjoy and need alot of protein though so i don't know what ill replace the beef with. I have a very very strong appetite. I eat loads of food. Im still super lean and muscular. I also hate leafy greens and veggies like brocolli. They tear up my stomach. <br />
<br />
I am at a point where I question if diet even has much to do with this. There were plenty of times I went off the diet and ate lots of chips or processed chocolate or other "bad" things and my skin got lighter and less irritated. Obviously diet is a huge component but I just question worrying about little things like will tomatoes make it worse or will eating chips and salsa one day or eating one kind of nut or skin on chicken actually cause all of this on my skin? I know alot of people say beef is bad, but I just don't know I buy that. I certainly think the fat in beef isn't great but I eat lean beef. I obviously get a little fat but just don't know I believe that a few grams per say of beef fat in my body is causing this. <br />
<br />
For about 2 years now, little by little ive cleaned up my diet and lifestyle and intuitively corrected and made changes to optimize my overall healthy but I haven't seen it translate to my psoriasis like I hoped. I don't let it get my down or depressed, maybe the odd day here and there I have that hopeless feeling but i pull myself out. Im pretty positive and motivated. I just don't understand this disease, still.<br />
<br />
My plan is keep making adjustments. Like I said I feel its time to cut coffee and eat less beef, just to try. I switched out the potatoes for sweet potatoes and im adjusting to get more veggies. I see it as process of various trials. At this point ive had this so long that the way I see it my only way to beat the disease is to find the formula that works for me. Just cutting this one thing or adding this one supplement or following a basic protocol won't do it for me I don't think.<br />
<br />
In addition to diet I know that stress is a factor, as they say, lol.<br />
<br />
I certainly have stress in my life. Wife had a baby late last year, we also bought a house last year. Ever since she got pregnant life has changed and my responsibilities have grown. I love it, but it is alot, It was a big life change. That being said, it certainly could be a major factor for me. But I feel like my ability to manage stress is greater than ever. I don't suffer from or experience anxiety. I did very badly in my early 20's but figured that out. Though my psoriasis was easy to manage then even though i ate like crap, smoked, and experienced bad anxiety and depression at times. I feel more fit than ever, sleep better, eat better, have better emotional stability but the psoriasis persists. <br />
<br />
Im covered in ugly red spots, often scaly and flaky. I feel embarrassed to take my shirt off around my family and enjoy the lake. I wouldn't want to go to the beach, one of my favorite things to do all my life. Ive always been a person who loves summer and being outside, wearing shorts and a tank top or being shirtless and enjoying the sun. I wear pants everyday though and often put a long sleeve on to go in public. I just seem to have psoriasis pretty badly but i have a healthier diet and lifestyle than most people I know. I know that comparing myself to other people won't do my any good and I just need to look at what I can do to change and what else I can try but its just a tough thing to deal with. I believe that this must be possible to heal naturally. I fear going on biologic drugs.<br />
<br />
Anyways, thats alot so thanks to anyone who makes it through, lol. Psoriasis is a strange thing and its tough and noone I know really understands.<br />
<br />
<hr class="mycode_hr" />
<br />
Edit by Fred: Mention of website removed.]]></description>
			<content:encoded><![CDATA[Hello,<br />
<br />
Just found this forum, have had psoriasis for about ten years but never really looked for a forum before. But in the past few years its progressed to an intolerable point and ive been struggling.<br />
<br />
Bit of background on me, 29 y/o male, live in Ontario, Canada. I consider myself very fit and healthy. <br />
<br />
I has psoriasis start around the ears and nose at first. That was easily remedied with any lotion. I really first noticed persistent psoriasis on my elbows and then knees. Then my belly button as well. I had a few spots pop up here and there on torso and arms but just adjusted my diet to eat more healthy meals (not eating a cookie for breakfast) and was able to control it pretty well with just a little steroid cream and basic 80/20 kind of diet (eat healthy 80% of time, eat junky food 20% of time), and no restrictions. Sometimes it would flare and be extra flaky but some diet correction and salt baths would get it under control. Over the years a new spot would develop here and there, on my fore arms, shins, torso, the forearms and shins would come on as a result of damage to the skin (cuts) that despite my "healthy lifestyle" wouldn't go away. Admittedly I did smoke on and off and drink from time to time for many years and often eat anything i felt like but I was active and felt like anytime i could reel it in and control flares. It was annoying but i could deal with it and enjoy going to the beach and wearing shorts and t shirts.<br />
<br />
In the past 2ish years my psoriasis kind of exploded. It basically covered my forearms, spots popped up all over the inside of my forearms, all over my upper arms, all over my stomach and lower back, my entire lower legs, not just on my shins but all over my calves, and my upper legs as well. Id often get flares and spots on my forehead and other spots on my face around my eyes. I had already quit smoking by this time but was drinking every week or two in the summer before this happened. <br />
<br />
I am still not sure why it got so bad. I shortly there after decided I needed to completely revamp my diet. I was eating a pretty carb heavy diet before, oats or gluten free hot cereal with fruit, peanut butter &amp; jelly sandwiches, sweet potatoes, beats, beans, quinoa, rice. Only protein I was eating really was chicken or fish for dinner and paired with rice usually, or made into tacos with cheese and other goodies you'd eat with tacos. All sorts of things but always "healthy". Often having snacks/dessert too though. Chocolate, cookies, peanut m&amp;m's. But I felt I needed to become more strict and get in more protein as well as I have always been very active and lean and muscular. I got diet guidance from the "REMOVED" mostly. I started eating eggs for breakfast with avocado, usually chicken for lunch with rice or potatoes, started eating beef after having pretty much avoided it for years, raw and unsalted nuts, yogurt, whey protein. I decided to give it some time to adjust. It didn't really accelerate my psoriasis but it kind of just stayed pretty bad and spots grew and grew. About a year ago I even went on a probiotic and did a few rounds of gut supplements for leaky gut. Not really any affect on the PSO.<br />
<br />
I always felt tired and bogged down before. Since eating like this I feel stronger and more on it. I feel like a beast mostly. But my psoriasis isn't getting better. I still pretty much eat like this except now I eat oats again, less eggs, cut the yogurt, but always try to balance carbs, protein and fats with all my meals. Its the best I have felt physically. I always do coffee in the morning after water. For breakfast I do a big bowl of oats with some fruit, lunch is beef or chicken or sardines with rice usually (just switched from basmati to brown), dinner is chicken or beef with potatoes (did white and yellow potatoes for a long time, just switched to sweet potatoes), i get snacks in, usually fruit, or banana bread i make with oats, banana, eggs, coconut oil or butter, little maple syrup or dark chocolate. <br />
<br />
1 - 3 months ago I've found a bit of healing happening. Spots cleared on my lower legs, forearms, face. And alot of spots became less flaky and scally. Stopped waking up to loads of skin in my bed. I was eating whey protein everyday and gluten by way of oats and loads of potatoes and nuts. But it seems to have gone back to being not great again. Think its cause I started having a few whiskeys on saturday nights watching ufc for too many weeks in a row. Still, ive stopped but over a month ago but still find it to be very irritated. I also stopped the whey and try to do gluten free oats. Ive also started eating more veggies as well. <br />
<br />
I am just not sure where to go from here. Thinking of cutting the coffee and beef. Already have been upping the veggie intake. I definitely enjoy and need alot of protein though so i don't know what ill replace the beef with. I have a very very strong appetite. I eat loads of food. Im still super lean and muscular. I also hate leafy greens and veggies like brocolli. They tear up my stomach. <br />
<br />
I am at a point where I question if diet even has much to do with this. There were plenty of times I went off the diet and ate lots of chips or processed chocolate or other "bad" things and my skin got lighter and less irritated. Obviously diet is a huge component but I just question worrying about little things like will tomatoes make it worse or will eating chips and salsa one day or eating one kind of nut or skin on chicken actually cause all of this on my skin? I know alot of people say beef is bad, but I just don't know I buy that. I certainly think the fat in beef isn't great but I eat lean beef. I obviously get a little fat but just don't know I believe that a few grams per say of beef fat in my body is causing this. <br />
<br />
For about 2 years now, little by little ive cleaned up my diet and lifestyle and intuitively corrected and made changes to optimize my overall healthy but I haven't seen it translate to my psoriasis like I hoped. I don't let it get my down or depressed, maybe the odd day here and there I have that hopeless feeling but i pull myself out. Im pretty positive and motivated. I just don't understand this disease, still.<br />
<br />
My plan is keep making adjustments. Like I said I feel its time to cut coffee and eat less beef, just to try. I switched out the potatoes for sweet potatoes and im adjusting to get more veggies. I see it as process of various trials. At this point ive had this so long that the way I see it my only way to beat the disease is to find the formula that works for me. Just cutting this one thing or adding this one supplement or following a basic protocol won't do it for me I don't think.<br />
<br />
In addition to diet I know that stress is a factor, as they say, lol.<br />
<br />
I certainly have stress in my life. Wife had a baby late last year, we also bought a house last year. Ever since she got pregnant life has changed and my responsibilities have grown. I love it, but it is alot, It was a big life change. That being said, it certainly could be a major factor for me. But I feel like my ability to manage stress is greater than ever. I don't suffer from or experience anxiety. I did very badly in my early 20's but figured that out. Though my psoriasis was easy to manage then even though i ate like crap, smoked, and experienced bad anxiety and depression at times. I feel more fit than ever, sleep better, eat better, have better emotional stability but the psoriasis persists. <br />
<br />
Im covered in ugly red spots, often scaly and flaky. I feel embarrassed to take my shirt off around my family and enjoy the lake. I wouldn't want to go to the beach, one of my favorite things to do all my life. Ive always been a person who loves summer and being outside, wearing shorts and a tank top or being shirtless and enjoying the sun. I wear pants everyday though and often put a long sleeve on to go in public. I just seem to have psoriasis pretty badly but i have a healthier diet and lifestyle than most people I know. I know that comparing myself to other people won't do my any good and I just need to look at what I can do to change and what else I can try but its just a tough thing to deal with. I believe that this must be possible to heal naturally. I fear going on biologic drugs.<br />
<br />
Anyways, thats alot so thanks to anyone who makes it through, lol. Psoriasis is a strange thing and its tough and noone I know really understands.<br />
<br />
<hr class="mycode_hr" />
<br />
Edit by Fred: Mention of website removed.]]></content:encoded>
		</item>
		<item>
			<title><![CDATA[New here]]></title>
			<link>https://psoriasisclub.org/thread-7699.html</link>
			<pubDate>Fri, 17 Feb 2023 06:48:32 -0500</pubDate>
			<dc:creator><![CDATA[<a href="https://psoriasisclub.org/member.php?action=profile&uid=3144">Sharonlgass1</a>]]></dc:creator>
			<guid isPermaLink="false">https://psoriasisclub.org/thread-7699.html</guid>
			<description><![CDATA[I am new to all of this. I have a possible diagnosis of psoriasis with a follow up appointment in a couple of weeks with a dermatologist. I do know that if I eat gluten, dairy, nightshade vegetables or sugar I get more spots, flaking and itching. I have eliminated all from my diet but still have mild spots, but no itching. Just trying to figure this all out.]]></description>
			<content:encoded><![CDATA[I am new to all of this. I have a possible diagnosis of psoriasis with a follow up appointment in a couple of weeks with a dermatologist. I do know that if I eat gluten, dairy, nightshade vegetables or sugar I get more spots, flaking and itching. I have eliminated all from my diet but still have mild spots, but no itching. Just trying to figure this all out.]]></content:encoded>
		</item>
		<item>
			<title><![CDATA[Hello]]></title>
			<link>https://psoriasisclub.org/thread-7694.html</link>
			<pubDate>Wed, 15 Feb 2023 16:29:42 -0500</pubDate>
			<dc:creator><![CDATA[<a href="https://psoriasisclub.org/member.php?action=profile&uid=3143">Tanya and Mike</a>]]></dc:creator>
			<guid isPermaLink="false">https://psoriasisclub.org/thread-7694.html</guid>
			<description><![CDATA[We are pleased to join the Psoriasis Club.  It is mainly Tanya who does the computer stuff but it is Mike who has suffered from Psoriasis for years.  Tanya encouraged him to go to a Dermatologist and he got started on some treatments.  The treatments led to trials in Canada for approximately 20 years.  But in the end it was Taltz that I live with now!  Tanya was by my side through all the creams, lotions, IV's, lights, and injections and knows everything from my journey better than I do (can you tell she is typing......LOL). <img src="https://psoriasisclub.org/images/smilies/Whip.gif" alt="Whip" title="Whip" class="smilie smilie_23" />]]></description>
			<content:encoded><![CDATA[We are pleased to join the Psoriasis Club.  It is mainly Tanya who does the computer stuff but it is Mike who has suffered from Psoriasis for years.  Tanya encouraged him to go to a Dermatologist and he got started on some treatments.  The treatments led to trials in Canada for approximately 20 years.  But in the end it was Taltz that I live with now!  Tanya was by my side through all the creams, lotions, IV's, lights, and injections and knows everything from my journey better than I do (can you tell she is typing......LOL). <img src="https://psoriasisclub.org/images/smilies/Whip.gif" alt="Whip" title="Whip" class="smilie smilie_23" />]]></content:encoded>
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