https://psoriasisclub.org/ Sat, 09 May 2026 14:07:56 +0000 MyBB https://psoriasisclub.org/thread-8438.html Thu, 19 Mar 2026 08:52:50 -0400 Fred]]> https://psoriasisclub.org/thread-8438.html
Dosage: 200 mg orally once daily on an empty stomach with water upon waking.

• Wait at least 30 minutes after taking before eating food.
• For patients who have difficulty swallowing tablets, Icotyde can be dispersed in water.

Tell your doctor if you have or ever had:

• have an infection that does not go away or that keeps coming back;
  
• have tuberculosis (TB) or have been in close contact with someone with TB;
  
• have recently received or are scheduled to receive an immunisation (vaccine). Avoid receiving live vaccines during treatment;
  
• have kidney problems;
  
• are pregnant or plan to become pregnant;
  
• are breastfeeding or plan to breastfeed;
  

Tell your doctor about all of the medications you are taking, including:

• Prescription medicines
  
• Over-the-counter medicines
  
• Vitamins
  
• Herbal supplements
  

Side effects: The most common side effects are headache, fungal infection, nausea, cough.

Important Safety Information:

Stop taking Icotyde and talk to your doctor if you have an infection, also report the following:

• Fever, sweat, or chills
  
• Muscle aches, weight loss or a cough
  
• Warm, red, or painful skin or sores on your body different from your psoriasis
  
• Diarrhoea or stomach pain
  
• Shortness of breath
  
• Blood in your mucus or phlegm 
  
• burning when you urinate or urinating more often than normal
  

Website: icotydehcp.com]]>
Dosage: 200 mg orally once daily on an empty stomach with water upon waking.

• Wait at least 30 minutes after taking before eating food.
• For patients who have difficulty swallowing tablets, Icotyde can be dispersed in water.

Tell your doctor if you have or ever had:

• have an infection that does not go away or that keeps coming back;
  
• have tuberculosis (TB) or have been in close contact with someone with TB;
  
• have recently received or are scheduled to receive an immunisation (vaccine). Avoid receiving live vaccines during treatment;
  
• have kidney problems;
  
• are pregnant or plan to become pregnant;
  
• are breastfeeding or plan to breastfeed;
  

Tell your doctor about all of the medications you are taking, including:

• Prescription medicines
  
• Over-the-counter medicines
  
• Vitamins
  
• Herbal supplements
  

Side effects: The most common side effects are headache, fungal infection, nausea, cough.

Important Safety Information:

Stop taking Icotyde and talk to your doctor if you have an infection, also report the following:

• Fever, sweat, or chills
  
• Muscle aches, weight loss or a cough
  
• Warm, red, or painful skin or sores on your body different from your psoriasis
  
• Diarrhoea or stomach pain
  
• Shortness of breath
  
• Blood in your mucus or phlegm 
  
• burning when you urinate or urinating more often than normal
  

Website: icotydehcp.com]]> https://psoriasisclub.org/thread-8344.html Mon, 15 Sep 2025 13:39:31 -0400 sunnyman]]> https://psoriasisclub.org/thread-8344.html Yes im still alive...
After 6 years of satisfaction with Stelara , this morning i have started Uzpruvo.
The license for Stelara is expired in Czech Republic and my Doctor has given me Bio-similar Uzpruvo.
Have you experience with this new bio treatment?
I hope that it will work well as Stelara.
Fingers crossed ]]> Yes im still alive...
After 6 years of satisfaction with Stelara , this morning i have started Uzpruvo.
The license for Stelara is expired in Czech Republic and my Doctor has given me Bio-similar Uzpruvo.
Have you experience with this new bio treatment?
I hope that it will work well as Stelara.
Fingers crossed ]]> https://psoriasisclub.org/thread-8339.html Mon, 08 Sep 2025 06:52:24 -0400 Angie]]> https://psoriasisclub.org/thread-8339.html
Started Pyzchiva on 18th June 2025, thought I would wait to see how it
was going before posting.

Well maybe a coincidence but had a slight headache on and off for about 5
days afterwards.

I have had pain in one shoulder , slightly progressing down arm some days
for about 4 weeks.  I sometimes suffer neck pain etc and blame it on pillows,
lifting etc.  Slight pain in one knee.  I have never been diagnosed with any type of arthritis,
I suffer from aches and pains but put that down to age! this time the pain is not for
going away, I await next jag to see if there is any difference.  I do not have
any swelling of fingers etc.

Skin remains the same as when taking Stelara, small bit appears on elbow and
goes again.  Flakes in ear remain the same.

No other issues or notable side effects.

Due next dose this week and will keep this thread updated.

Hope you are all well.

Angie  Wave]]>
Started Pyzchiva on 18th June 2025, thought I would wait to see how it
was going before posting.

Well maybe a coincidence but had a slight headache on and off for about 5
days afterwards.

I have had pain in one shoulder , slightly progressing down arm some days
for about 4 weeks.  I sometimes suffer neck pain etc and blame it on pillows,
lifting etc.  Slight pain in one knee.  I have never been diagnosed with any type of arthritis,
I suffer from aches and pains but put that down to age! this time the pain is not for
going away, I await next jag to see if there is any difference.  I do not have
any swelling of fingers etc.

Skin remains the same as when taking Stelara, small bit appears on elbow and
goes again.  Flakes in ear remain the same.

No other issues or notable side effects.

Due next dose this week and will keep this thread updated.

Hope you are all well.

Angie  Wave]]> https://psoriasisclub.org/thread-8179.html Mon, 13 Jan 2025 16:57:12 -0500 SquidBro]]> https://psoriasisclub.org/thread-8179.html
It was great. Within probably 2 or 3 months i was nearly clear (90+%) after having bad 90%+ coverage with horrible scales. I had a few flares here and there but the treatment would zap the new psoriasis fast. I was doping 3 treatments a week. A few months ago now my doc dropped me to once a week and since then the PSO has been growing and growing again. Cold weather in Canada doesnt help.

The derm wants to take me off it. She says its not wise to keep me on it long term due to risk of cancer. But i won't go on meds and since getting a taste of clear skin im seriously considering getting my own home unit and using it conservatively. No more than 3 times a week, very short period, like a minute per side. Being careful to avoid any burning or skin irritation.

Admittedly i am a little distrustful of the derm, shes nice but shes very pharmaceutical focused and personally i dont trust and wont touch the stuff. When i started the phototherapy she told me they have 30+ years of data on UVB and that its safe, effective and doesn't have much cancer risk. But that the most data they have on biologics is 8 years. But shes pushed me very hard to go that route. I have very persistent psoriasis, we both know that the other drugs you have to go through before biologics wont work but you know... gotta follow the "protocol". I also really don't like this and it makes me very skeptical and distrustful when it comes to the way derms treat pso.

I am a person who responds well to sun, i dont burn easy. Phototherapy has been great for me. Like a miracle. But its clear 1 treatment a week, especially during the winter, isnt enough and my derm has already told me i HAVE to come off soon.

I am not looking for medical advice, but wondering if anyone has used uvb long term? I would think using it every other day indefinitely is a poor idea but using it more or less (without going overboard) as needed seasonally might be a reasonable method of treatment.

What do we think? Anyone use UVB at home? Looking for feeback and insight from people who have lots of experience with UVB.]]>
It was great. Within probably 2 or 3 months i was nearly clear (90+%) after having bad 90%+ coverage with horrible scales. I had a few flares here and there but the treatment would zap the new psoriasis fast. I was doping 3 treatments a week. A few months ago now my doc dropped me to once a week and since then the PSO has been growing and growing again. Cold weather in Canada doesnt help.

The derm wants to take me off it. She says its not wise to keep me on it long term due to risk of cancer. But i won't go on meds and since getting a taste of clear skin im seriously considering getting my own home unit and using it conservatively. No more than 3 times a week, very short period, like a minute per side. Being careful to avoid any burning or skin irritation.

Admittedly i am a little distrustful of the derm, shes nice but shes very pharmaceutical focused and personally i dont trust and wont touch the stuff. When i started the phototherapy she told me they have 30+ years of data on UVB and that its safe, effective and doesn't have much cancer risk. But that the most data they have on biologics is 8 years. But shes pushed me very hard to go that route. I have very persistent psoriasis, we both know that the other drugs you have to go through before biologics wont work but you know... gotta follow the "protocol". I also really don't like this and it makes me very skeptical and distrustful when it comes to the way derms treat pso.

I am a person who responds well to sun, i dont burn easy. Phototherapy has been great for me. Like a miracle. But its clear 1 treatment a week, especially during the winter, isnt enough and my derm has already told me i HAVE to come off soon.

I am not looking for medical advice, but wondering if anyone has used uvb long term? I would think using it every other day indefinitely is a poor idea but using it more or less (without going overboard) as needed seasonally might be a reasonable method of treatment.

What do we think? Anyone use UVB at home? Looking for feeback and insight from people who have lots of experience with UVB.]]> https://psoriasisclub.org/thread-8168.html Mon, 30 Dec 2024 08:51:19 -0500 ccarr06]]> https://psoriasisclub.org/thread-8168.html
Has anyone switched from Stelara to Humira due to Psoriatic Arthritis?

PsA symptoms started a few months back. Had my appointment with the rheumatologist this morning. They suggested methotrexate first, which I shut down immediately as it didn't work for my psoriasis. They then prescribed Humira. Has anyone else made this switch, and how did you find it? Would also appreciate if anyone on Humira could let me know their experience on it.]]>
Has anyone switched from Stelara to Humira due to Psoriatic Arthritis?

PsA symptoms started a few months back. Had my appointment with the rheumatologist this morning. They suggested methotrexate first, which I shut down immediately as it didn't work for my psoriasis. They then prescribed Humira. Has anyone else made this switch, and how did you find it? Would also appreciate if anyone on Humira could let me know their experience on it.]]> https://psoriasisclub.org/thread-8098.html Wed, 11 Sep 2024 09:36:52 -0400 pingu]]> https://psoriasisclub.org/thread-8098.html
Now I have to come off Ciclosporine as you can only be on it for 2 years.

Now, my consultant prescribed me Skilarence again and I declined as it didn't work and he said he had not prescribed it and he had no record of it! Great, not keeping proper medical records.

He tried again to get me to go on it but I have insisted on a referral but he has stated I cannot be referred to the biologicals team until I have a PASI. However, I am now not on any medication and I know that in the coming months my psoriasis will flare up again. His secretary stated NICE guidlines which I have read and none of them prevent hinm referring me, what the guidelines are is a PASI of 10 and a DLQI of 10 to be prescribed biologicals.

I will easily hit these when my current medication wears off and not looking forward to a flare up. I am tempted to push to get the referal as there is a wait after he refers me anyway, he can do it immediately and I am in the queue and my take is that I have a condition that will deteriorate and now I am in a position where they are doing nothing about it.

Interestingly I know its about cost and I asked to go back on methotrexate as my liver scores indicate there is no damage, the NICE guidelines he states suggest methotrexate as a first line of defence followed by other treatments.

Today I am at a loss as to escalate via PALs, ask for a second opinion or even go full nuclear and report incorrect records keeping and duty of care.

Any advice greatly appreciated any questions feel free to ask.

Thanks and sorry for the rambling rant.]]>
Now I have to come off Ciclosporine as you can only be on it for 2 years.

Now, my consultant prescribed me Skilarence again and I declined as it didn't work and he said he had not prescribed it and he had no record of it! Great, not keeping proper medical records.

He tried again to get me to go on it but I have insisted on a referral but he has stated I cannot be referred to the biologicals team until I have a PASI. However, I am now not on any medication and I know that in the coming months my psoriasis will flare up again. His secretary stated NICE guidlines which I have read and none of them prevent hinm referring me, what the guidelines are is a PASI of 10 and a DLQI of 10 to be prescribed biologicals.

I will easily hit these when my current medication wears off and not looking forward to a flare up. I am tempted to push to get the referal as there is a wait after he refers me anyway, he can do it immediately and I am in the queue and my take is that I have a condition that will deteriorate and now I am in a position where they are doing nothing about it.

Interestingly I know its about cost and I asked to go back on methotrexate as my liver scores indicate there is no damage, the NICE guidelines he states suggest methotrexate as a first line of defence followed by other treatments.

Today I am at a loss as to escalate via PALs, ask for a second opinion or even go full nuclear and report incorrect records keeping and duty of care.

Any advice greatly appreciated any questions feel free to ask.

Thanks and sorry for the rambling rant.]]> https://psoriasisclub.org/thread-8009.html Tue, 12 Mar 2024 07:13:48 -0400 BigA1988]]> https://psoriasisclub.org/thread-8009.html
I've been using Enstilar foam with good results for a while now, but ever since I started using it, I developed a red rash around my nose and chin. At first I though it was down to a milk allergy I have, but I stopped using Enstilar for 3 days and the rash went away. I then started using it again and the rash came back. From looking online, it seems that it's allergic contact dermatitis, caused by Butylated Hydroxytoluene.
Does anyone else have any experience with this? And does anyone know if there's a particular antihistamine that could combat this? I tried using a hydrocortisone directly on the rash, but that didn't do much.

Any help would be much appreciated. Thank you.]]>
I've been using Enstilar foam with good results for a while now, but ever since I started using it, I developed a red rash around my nose and chin. At first I though it was down to a milk allergy I have, but I stopped using Enstilar for 3 days and the rash went away. I then started using it again and the rash came back. From looking online, it seems that it's allergic contact dermatitis, caused by Butylated Hydroxytoluene.
Does anyone else have any experience with this? And does anyone know if there's a particular antihistamine that could combat this? I tried using a hydrocortisone directly on the rash, but that didn't do much.

Any help would be much appreciated. Thank you.]]> https://psoriasisclub.org/thread-8003.html Thu, 29 Feb 2024 17:17:02 -0500 OneBigItch]]> https://psoriasisclub.org/thread-8003.html
I've had three injections in the last two weeks and can already see an improvement in some patches on my arms and side, though my legs have yet to take notice.

My derm has yet to sort my blood tests out but hopefully they'll be fine. I'll try and keep you updated with progress and fingers crossed for good results.]]>
I've had three injections in the last two weeks and can already see an improvement in some patches on my arms and side, though my legs have yet to take notice.

My derm has yet to sort my blood tests out but hopefully they'll be fine. I'll try and keep you updated with progress and fingers crossed for good results.]]> https://psoriasisclub.org/thread-7983.html Fri, 26 Jan 2024 15:08:40 -0500 Kat]]> https://psoriasisclub.org/thread-7983.html

Today I received my Skyrizi:




It was nicely packaged and as you can see the card has the white dot meaning that the temperature wasn't compromised (it would be red otherwise)

Two pens, Week 0 and week 4 (the next one will be week 16, I'll call for a refill at about 4 weeks before it's due)

Not much paperwork, one page describing how the temperature card works which a simple sentence of white is good and red is bad would have sufficed, but it was an in depth explanation which is expected when it comes to medical stuff.

4 pages of information.  Describing what Skyrizi is, side effects, etc.  Things you'd find on the webpage.

It came in an insulated box with two ice packs,

So, I'm not really ready for some reason but I will inject later today or tomorrow.  ]]>

Today I received my Skyrizi:




It was nicely packaged and as you can see the card has the white dot meaning that the temperature wasn't compromised (it would be red otherwise)

Two pens, Week 0 and week 4 (the next one will be week 16, I'll call for a refill at about 4 weeks before it's due)

Not much paperwork, one page describing how the temperature card works which a simple sentence of white is good and red is bad would have sufficed, but it was an in depth explanation which is expected when it comes to medical stuff.

4 pages of information.  Describing what Skyrizi is, side effects, etc.  Things you'd find on the webpage.

It came in an insulated box with two ice packs,

So, I'm not really ready for some reason but I will inject later today or tomorrow.  ]]> https://psoriasisclub.org/thread-7895.html Fri, 10 Nov 2023 17:08:57 -0500 Kat]]> https://psoriasisclub.org/thread-7895.html

So, first part of my journey is getting insurance approval and seeing what my costs (if any) will be. Different insurance than when I was on biologics before so a bit different process is involved.]]>

So, first part of my journey is getting insurance approval and seeing what my costs (if any) will be. Different insurance than when I was on biologics before so a bit different process is involved.]]> https://psoriasisclub.org/thread-7848.html Thu, 28 Sep 2023 10:09:18 -0400 Forest Walker]]> https://psoriasisclub.org/thread-7848.html
I'd been using Q-Tip to apply a milder ointment, off and on for a long while, between my toes.  Then last night, I thought why not use the Q-Tip to apply to patches that are easy to get to, such as on the legs?

Does anyone else use a Q-Tip this way?  Do you always apply ointment with your bare fingers?]]>
I'd been using Q-Tip to apply a milder ointment, off and on for a long while, between my toes.  Then last night, I thought why not use the Q-Tip to apply to patches that are easy to get to, such as on the legs?

Does anyone else use a Q-Tip this way?  Do you always apply ointment with your bare fingers?]]> https://psoriasisclub.org/thread-7803.html Tue, 08 Aug 2023 14:31:32 -0400 Kat]]> https://psoriasisclub.org/thread-7803.html
The FDA approved Sotyktu for use in the US at the end of 2022.  Another oral medication.  Their website says unsure if it can harm unborn baby and unsure if it can cause harm while breastfeeding.  Also could cause liver problems and not for use with people who have rheumatoid arthritis. 

First ad I've seen for it and I tend to look it up if it's new to me.  It's always difficult to read the side effects and warnings. 

(I saw where there was a post showing it was approved in the US but it had been removed but the one showing approval in England was still up. Not sure I'd be a fan of trying it but thought I'd put it out there anyway.)]]>
The FDA approved Sotyktu for use in the US at the end of 2022.  Another oral medication.  Their website says unsure if it can harm unborn baby and unsure if it can cause harm while breastfeeding.  Also could cause liver problems and not for use with people who have rheumatoid arthritis. 

First ad I've seen for it and I tend to look it up if it's new to me.  It's always difficult to read the side effects and warnings. 

(I saw where there was a post showing it was approved in the US but it had been removed but the one showing approval in England was still up. Not sure I'd be a fan of trying it but thought I'd put it out there anyway.)]]> https://psoriasisclub.org/thread-7786.html Fri, 07 Jul 2023 12:32:04 -0400 Turnedlight]]> https://psoriasisclub.org/thread-7786.html
It sounds like a very obvious thing to try but I have to admit I hadn’t thought of trying it until recently, probably because you get a barrage of different creams from the doctor..

Ok so this isn’t usually a prescribed drug, you can just buy it over the counter - but I didn’t put it in natural treatments because it isn’t that either.,]]>
It sounds like a very obvious thing to try but I have to admit I hadn’t thought of trying it until recently, probably because you get a barrage of different creams from the doctor..

Ok so this isn’t usually a prescribed drug, you can just buy it over the counter - but I didn’t put it in natural treatments because it isn’t that either.,]]> https://psoriasisclub.org/thread-7779.html Wed, 28 Jun 2023 15:31:42 -0400 Fred]]> https://psoriasisclub.org/thread-7779.html
Dosage: The recommended dose is one 6 mg once daily with or without food. Do not split, break, crush, or chew the tablet.

Tell your doctor if you have or ever had:

• liver or kidney disease;
  
• hepatitis B or C;
  
• high blood levels of fat (triglycerides);
  
• any type of cancer;
  
• tuberculosis or have been exposed to tuberculosis;
  
• if you have an infection that keeps returning or does not go away;
  
• if you are being treated for an infection;
  
• if you have recently received or are scheduled to receive a vaccine;
  
• if you have high blood pressure, high cholesterol, diabetes, menopause, family history of coronary artery disease, being overweight, or being over 50, or if you smoke;
  
• if you are pregnant or breastfeeding.
  

Tell your doctor about all of the medications you are taking, including:

• Prescription medicines
  
• Over-the-counter medicines
  
• Vitamins
  
• Herbal supplements
  

Side effects: The most common side effects are common cold, sore throat, and sinus infection (upper respiratory infections) cold sores (herpes simplex) sores on the inner lips, gums, tongue, or roof of the mouth (canker sores) inflamed hair pores (folliculitis) acne.

Important Safety Information:

Stop taking Sotyktu and get emergency medical help right away if you develop any of the following symptoms of a serious allergic reaction:

• Feeling faint
  
• Swelling of your face, eyelids, lips, mouth, tongue, or throat
  
• Trouble breathing or throat tightness
  
• Chest tightness
  
• Skin rash, hives
  

What should I do or tell my doctor after starting Sotyktu:

Call or see a dermatologist if you notice any symptoms of TB.
Call or see a dermatologist right away if you have an infection or develop any new or worsening symptoms of an infection, including:

• Fever, sweats, or chills
  
• Muscle aches
  
• Weight loss
  
• Cough
  
• Shortness of breath
  
• Blood in your phlegm (mucus you cough up)
  
• Warm, red, or painful skin or sores on your body different from your psoriasis
  
• Diarrhoea or stomach pain
  
• Burning when you urinate or urinating more often than normal
  
• Feeling very tired
  

Website: sotyktu.com]]>
Dosage: The recommended dose is one 6 mg once daily with or without food. Do not split, break, crush, or chew the tablet.

Tell your doctor if you have or ever had:

• liver or kidney disease;
  
• hepatitis B or C;
  
• high blood levels of fat (triglycerides);
  
• any type of cancer;
  
• tuberculosis or have been exposed to tuberculosis;
  
• if you have an infection that keeps returning or does not go away;
  
• if you are being treated for an infection;
  
• if you have recently received or are scheduled to receive a vaccine;
  
• if you have high blood pressure, high cholesterol, diabetes, menopause, family history of coronary artery disease, being overweight, or being over 50, or if you smoke;
  
• if you are pregnant or breastfeeding.
  

Tell your doctor about all of the medications you are taking, including:

• Prescription medicines
  
• Over-the-counter medicines
  
• Vitamins
  
• Herbal supplements
  

Side effects: The most common side effects are common cold, sore throat, and sinus infection (upper respiratory infections) cold sores (herpes simplex) sores on the inner lips, gums, tongue, or roof of the mouth (canker sores) inflamed hair pores (folliculitis) acne.

Important Safety Information:

Stop taking Sotyktu and get emergency medical help right away if you develop any of the following symptoms of a serious allergic reaction:

• Feeling faint
  
• Swelling of your face, eyelids, lips, mouth, tongue, or throat
  
• Trouble breathing or throat tightness
  
• Chest tightness
  
• Skin rash, hives
  

What should I do or tell my doctor after starting Sotyktu:

Call or see a dermatologist if you notice any symptoms of TB.
Call or see a dermatologist right away if you have an infection or develop any new or worsening symptoms of an infection, including:

• Fever, sweats, or chills
  
• Muscle aches
  
• Weight loss
  
• Cough
  
• Shortness of breath
  
• Blood in your phlegm (mucus you cough up)
  
• Warm, red, or painful skin or sores on your body different from your psoriasis
  
• Diarrhoea or stomach pain
  
• Burning when you urinate or urinating more often than normal
  
• Feeling very tired
  

Website: sotyktu.com]]> https://psoriasisclub.org/thread-7723.html Mon, 27 Mar 2023 08:35:12 -0400 Turnedlight]]> https://psoriasisclub.org/thread-7723.html
As far as I can see they are two separate firms (sciensus used to be healthcare at home)
But they both contact me to try and arrange my delivery - one you can do online, the other wants you to use an app.

I’ve arranged this delivery with one of the firms, but was curious so I asked my derm nurse whether two different firms were both trying to deliver my jabs.

They answered by telling me the firm I was set up to get my jabs from - without answering my question about who the other guys are - anyone know anything more cos I think it’s weird.]]>
As far as I can see they are two separate firms (sciensus used to be healthcare at home)
But they both contact me to try and arrange my delivery - one you can do online, the other wants you to use an app.

I’ve arranged this delivery with one of the firms, but was curious so I asked my derm nurse whether two different firms were both trying to deliver my jabs.

They answered by telling me the firm I was set up to get my jabs from - without answering my question about who the other guys are - anyone know anything more cos I think it’s weird.]]>