Fumaderm

[snookams]

Hi Paul

Ive just recently been back to see my consultant and he's cut me down to 4 Fumaderm blue tabs a day as my body cant tolerate 6 per day, not sure if its cos im very slim?? My Psoriasis is now almost clear and i only get the flushes/tummy upsets once or twice a week Im goin to try and push it up to 5 a day and see how i go but if the symptoms get any worse il cut it back again!! Hopefully i'l remain on them as we tend to go abroad 2 or 3 times per year and this would be bliss

If any1 is wondering why "Snookams" is such a strange name my 6yr son picked it, its his favorite moshi monster but shouldnt need to explain myself!!

Anyway let me know how u get on... My consultant also said that Fumaderm prob would not be licenced in the UK until mid 2012, my GP wasnt happy about me getting prescribed an unlicenced drug however a Consultant is a few steps above a GP so he can take a hike, if it helps me then that makes me happy

Take Care

Hi Snookams

I'm a 35y old from Ireland and have had P for 30yrs, I've been moved onto systemic drugs as I can no longer use UV treatment as I've used it too much over the years and my Doc has said that I can't go back to it ever again, so I'm afraid I'm stuck with the tablets. I was taking Methotrexate for 1y and was completely free of P for the first time years. The Metho was messing around with my liver a bit so I had to come off it and onto Fumaderm. Within 3 weeks of stopping the Methotrexate I was covered in P again, unreal!

I started taking Fumaderm 6 weeks ago and I'm currently taking 5 tables a day since the start of week 6. I had very little side effect up to now. I think I got 3 stomach cramps in 5 weeks, that's it!! Oh boy am I getting them now, it just took me two hours to eat my dinner as the cramps were so bad.

I woke up last night at 4am and had to run to the toilet! I get hot flushes also which make me look a bit mental! My stomach is constantly groaning as if I'm starving and more air is coming out of my behind than I'd like. I find taking an over the counter pill for an upset stomach does the trick though so far, might be worth looking into getting some. I also starting drinking low fat milk every morning and during the day. I'm not going to stop taking Fumaderm and will let you know how it's going next week.

Keep the chin up.
[/quote]

[Caroline]

(Thu-01-12-2011 11:35 AM)snookams Wrote:  My consultant also said that Fumaderm prob would not be licenced in the UK until mid 2012, my GP wasnt happy about me getting prescribed an unlicenced drug however a Consultant is a few steps above a GP so he can take a hike, if it helps me then that makes me happy

Quite odd isn't it? That these products, of which already for years is known that it works very well, still are unlicensed.
Maybe because pharma industry pushes other products? And has no interests in dimethylfumarates?
Anyway it is the reason that indeed in the netherlands the patients organization is starting this scientific research.

& thanks for explaining your forum name

[Mateychuk]

Hello All Fumaderm users or those contemplating!

I have contributed on this subject previously but not recently. My success with Fumaderm continues with a 1 x 120 mg per day maintenance program. This is after approximately 37 years of psoriasis along with the whole gamut of steroid & topical controls over the years plus Methotrexate and UVB light therapy. I have never had any injection treatments, choosing to avoid this route due to extreme cost plus unknown side effects. My Plaque Psoriasis was severe over the years, so much so that I was rejected from a clinical study due to the severity. I stumbled on some information regarding Fumaderm on the internet, did some research and made this information available to my local General Practitioner who was equally convinced it was worth a try. My therapy with Fumaderm began during August of 2007. I was fortunate not to experience the severe stomach cramping or diarrhea as reported by others, having to endure what could be termed as tolerable exposure during the run-up and peak medication of 6 x 120 mg Fumaderm tablets. Heart burn was a bit of a problem as well but relaxed with use of OTC medication. During the course of therapy and currently, my blood platelets are monitored by my local Doctor.

Because the drug is not FDA Approved, importing into the USA is a problem requiring strict paper-work regimen to diminish the risk of confiscation.

We all know that Psoriasis sufferers do not experience uniform results from any medication but due to my success after so may years, I will always be a proponent and encourage those that are on Fumaderm medication or researching this therapy, to continue in this direction.

William Mateychuk

[Caroline]

Thank you William for your story. 1x120 mg is very well !! Congratulations.
Your story also tells another success on the use of Dimethylfumarates.
Indeed the FDA can be a burden as they are somewhat "over following" the rules. In that sense the european research on dimethylfumarate may also be a stimulant for later more research and acceptance in other parts of the world.

Caroline

[Johnmac]

Hi Isabella,

As your post (below) was written over a year ago, I'm wondering how you're going with the Fumaderm now. Have the improvements continued?


All the best,

John

(Thu-29-09-2011 14:43 PM)Isabelle Wrote:  It is also not a fast-acting treatment, so if you're looking for a quick fix, this isn't it.

But I do think it's safer than almost any other treatment out there - and Germany has been using this therapy for over 20 years.

My own dermatologist has had 3 patients who were prescribed Fumaderm for a period of 3-4 years, whose psoriasis symptoms did not return once they ended treatment.. at least this is what he told me.. whether it's true or not I cannot say.. but he is a very good doctor and treats me with the utmost care, so I would have a hard time calling him a liar.

Having been treated with Fumaderm now for 3 months, I can see a slow but steady improvement in my condition. When I started on the old forum, my Psoriasis Score was 37.

Today it is 23.

In the next few months, I aiming for 0.

[Fred]

(Thu-13-12-2012 07:44 AM)Johnmac Wrote:  Hi Isabella,

As your post (below) was written over a year ago, I'm wondering how you're going with the Fumaderm now. Have the improvements continued?

All the best,

John

Sorry John, Isabelle hasn't logged in for a year now. I have sent her some emails before now but no answer, so I can only assume she is either clear or forgot where we are. That's the problem with this type of forum, people don't always come back to keep us informed or to help others. But then the other way of looking at it is, if they are happy then it's fine.

Anyway I see your talking to our resident Biker now, so I hope that helps. And please feel free to start a new thread about your progress if you wish.

Regards.

Fred.

[Fred]

Hello Folks, can I just but in here.

I think this thread is going off topic. It's titled Fumaderm, but you are now talking about Psorinovo and Dimethylfumarates. I dont want to stop your discussion but I think it could end up giving misleading information that people may take to be about Fumaderm.

I may try to tidy this thread up if I can, and maybe stick these posts on Caroline's thread or start another thread about Psorinovo. what do you think?

EDIT: after talking with Caroline we have decided to split this thread as it was going slightly Off Topic. I have moved the new posts to a new thread here: http://psoriasisclub.org/showthread.php?tid=1115

I think as this is an old thread it's probably best to lock it, and as it gets a lot of hits I will make it sticky. Members are welcome to start new threads about Fumaderm if they wish.

You may also be interested in Caroline's thread about Dimethylfumarates here: http://psoriasisclub.org/showthread.php?tid=760

Any questions please let me know.

Fred.